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  • Monday, Jun 10th
    10:30 AM – 12:00 PM ET
    Identifying and Combating the Threat and Enhancing the Promise of Social and Behavioral Genomics
    Location: Forum B
    Corresponding Author: Anya Prince – University of Iowa
    Speaker: Jean Cadigan, PhD
    Panelist: Lucas J. Matthews, PHD (he/him/his) – Columbia University
    Panelist: Kriste Kuczynski (she/her/hers) – University of North Carolina - Chapel Hill
    Panelist: Daphne Martschenko, PhD – Stanford University
    Biobanking and genomic databases
  • Monday, Jun 10th
    1:30 PM – 3:00 PM ET
    "'Whose Science? Whose Knowledge?’* Equitable Partnerships and Diverse Teams for Just Genomic Research"
    Location: Forum B
    Corresponding Author: Shawneequa Callier, MA JD – The George Washington University
    Panelist: Lori B. Chibnik – Harvard University
    Panelist: Elise Li Zheng, PhD – Columbia University
    Panelist: Paul Meller, PhD (he/him/his) – Wellcome Trust
    Biobanking and genomic databasesCommunity engagementEquity and justice in genetics
  • Monday, Jun 10th
    3:30 PM – 5:00 PM ET
    Paper Session C3
    Location: Hub 2
    Biobanking and genomic databases
  • Monday, Jun 10th
    3:30 PM – 5:00 PM ET
    Attitudes On Law Enforcement Use Of Clinical Genetic Data
    Location: Hub 2
    Speaker: Sarah Duensing, JD (she/her/hers) – University of Utah
    Biobanking and genomic databasesLaw, regulation, and governance
  • Monday, Jun 10th
    3:30 PM – 5:00 PM ET
    Differences between private, government, and consortium data stewards and their impact on genetic research with diverse ancestral populations
    Location: Hub 2
    Speaker: Kayte Spector-Bagdady, JD, MBe (she/her/hers) – University of Michigan
    Biobanking and genomic databasesEquity and justice in genetics
  • Monday, Jun 10th
    3:30 PM – 5:00 PM ET
    Behind the screens: A case study of misconceptions reflected in social media on the role of health-related consumer genomics services in IGG
    Location: Hub 2
    Speaker: Nathan Reed – Northwestern University
    Biobanking and genomic databasesLaw, regulation, and governance
  • Monday, Jun 10th
    3:30 PM – 5:00 PM ET
    Federally Qualified Health Center All of Us Participants Conflating Research and Care
    Location: Hub 2
    Speaker: Danielle Pacia, MBE – The Hastings Center
    Biobanking and genomic databasesEquity and justice in geneticsReturn of results and incidental findings
  • Monday, Jun 10th
    5:00 PM – 7:00 PM ET
    03- Informed consent at scale: choice, privacy, and data-sharing strategies for a large, unselected research cohort
    Location: The Gallery
    Presenter: Sarah Elson, PhD (she/her/hers) – 23andMe, Inc.
    Biobanking and genomic databasesMethodology and study design
  • Monday, Jun 10th
    5:00 PM – 7:00 PM ET
    04- Democratization and Cloud-Based Genomic Data Sharing: Views of Platform Developers and Early Adopters
    Location: The Gallery
    Presenter: Sarah C. Nelson, MPH, PhD (she/her/hers) – University of Washington
    Biobanking and genomic databasesEquity and justice in genetics
  • Monday, Jun 10th
    5:00 PM – 7:00 PM ET
    05- The promise of comprehensive retention and research use of residual newborn screening bloodspots
    Location: The Gallery
    Presenter: Erin Johnson, PhD – University of Utah
    Biobanking and genomic databasesEquity and justice in genetics
  • Monday, Jun 10th
    5:00 PM – 7:00 PM ET
    06- Responsible sharing to minimize harmful secondary use of large datasets
    Location: The Gallery
    Presenter: Pilar Ossorio, PhD, JD – University of Wisconsin
    Biobanking and genomic databasesEquity and justice in geneticsLaw, regulation, and governance
  • Monday, Jun 10th
    5:00 PM – 7:00 PM ET
    07- Neurogenetics and Indigenous Data Sovereignty: Emerging Ethical Considerations
    Location: The Gallery
    Presenter: Jonathan Kim, BS, MPH (he/him/his) – Arizona State University
    Biobanking and genomic databasesIndigenous communities collaboration
  • Tuesday, Jun 11th
    5:00 PM – 7:00 PM ET
    24- Anticipating ELSI of the NIH Human Virome Program
    Location: The Gallery
    Presenter: Gail E. Henderson, PhD (she/her/hers) – University of North Carolina - Chapel Hill
    Biobanking and genomic databasesEducation and public understanding of genetic science
  • Tuesday, Jun 11th
    5:00 PM – 7:00 PM ET
    07- Regulation of data sharing in international genomics research: Ethical, social and legal implications
    Location: The Gallery
    Presenter: Deborah Ekusai Sebatta, MA (she/her/hers) – Makerere University (Uganda)
    Biobanking and genomic databasesEquity and justice in geneticsLaw, regulation, and governance
  • Tuesday, Jun 11th
    5:00 PM – 7:00 PM ET
    08- Considerations on Sex Data Bias
    Location: The Gallery
    Presenter: Rebecca Sanaeikia, University of Rochester – University of Rochester
    Biobanking and genomic databasesLaw, regulation, and governance
  • Tuesday, Jun 11th
    5:00 PM – 7:00 PM ET
    03- Poster 1. #DATABACK: Structuring Indigenous Bioeconomies through Indigenous Data and Digital Sovereignty for Precision Health
    Location: The Gallery
    Presenter: Krystal S. Tsosie, PhD, MPH, MA (she/her/hers) – Arizona State University / Native BioData Consortium
    AI and machine learningBiobanking and genomic databasesIndigenous communities collaboration
  • Tuesday, Jun 11th
    5:00 PM – 7:00 PM ET
    Using Artificial Intelligence and Machine Learning Approaches to Operationalize Indigenous Genomic Data Sovereignty and Improve Health Equity
    Location: The Gallery
    Presenter: Krystal S. Tsosie, PhD, MPH, MA (she/her/hers) – Arizona State University / Native BioData Consortium
    AI and machine learningBiobanking and genomic databasesIndigenous communities collaboration
  • Tuesday, Jun 11th
    5:00 PM – 7:00 PM ET
    05- Poster 3. #DATABACK: Structuring Indigenous Bioeconomies through Indigenous Data and Digital Sovereignty for Precision Health
    Location: The Gallery
    Presenter: Krystal S. Tsosie, PhD, MPH, MA (she/her/hers) – Arizona State University / Native BioData Consortium
    AI and machine learningBiobanking and genomic databasesIndigenous communities collaboration
  • Wednesday, Jun 12th
    1:30 PM – 3:00 PM ET
    ELSI of implementing clinical genetic testing in kidney disease and transplantation care
    Location: Hub 1
    Speaker: Tamar Schiff, MD (she/her/hers) – NYU Grossman School of Medicine
    Biobanking and genomic databasesClinical genetic testingEquity and justice in genetics
  • Wednesday, Jun 12th
    1:30 PM – 3:00 PM ET
    Increasing Diversity in Genetic Databases: Lessons Learned from 20 Years of Slow Progress
    Location: Hub 1
    Presenter: Robert I. Field, JD, MPH, PhD – Drexel University
    Biobanking and genomic databasesEquity and justice in genetics
  • Wednesday, Jun 12th
    1:30 PM – 3:00 PM ET
    Novel Nonmedical Uses of Genetic Information and Future Concerns
    Location: Forum A
    Corresponding Author: Christi Guerrini, JD, MPH (she/her/hers) – Baylor College of Medicine
    Moderator: Stephanie Malia Fullerton, DPhil (she/her/hers) – University of Washington
    Panelist: Sara Huston, MS (she/her/hers) – Lurie Children's
    Panelist: Jennifer K. Wagner, JD PhD (she/her/hers) – Pennsylvania State University
    Panelist: Jill O. Robinson, MA – Baylor College of Medicine
    Biobanking and genomic databasesLaw, regulation, and governance