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  • Monday, Jun 10th
    10:30 AM – 12:00 PM ET
    Beneficial engagement with Indigenous Peoples: A survey of Tribal research governance in the United States
    Location: Hub 1
    Speaker: Ibrahim Garba, SJD (he/him/his) – University of Arizona
    Community engagementIndigenous communities collaborationLaw, regulation, and governance
  • Monday, Jun 10th
    1:30 PM – 3:00 PM ET
    Paper Session B4
    Location: Hub 1
    Community engagement
  • Monday, Jun 10th
    1:30 PM – 3:00 PM ET
    Exploring Ethical Dialogues in genomics research: A Qualitative Analysis of the Drama of DNA Method in South Africa.
    Location: Hub 1
    Speaker: Lebogang Montewa, MPH (she/her/hers) – University of Cape Town (South Africa)
    Community engagementEducation and public understanding of genetic scienceReturn of results and incidental findings
  • Monday, Jun 10th
    1:30 PM – 3:00 PM ET
    Learning Together about Genetics: Insights from a Community-University Partnership
    Location: Hub 1
    Speaker: Susan Brown Trinidad, MA, PhD (she/her/hers) – University of Washington
    Community engagementIndigenous communities collaboration
  • Monday, Jun 10th
    1:30 PM – 3:00 PM ET
    "'Whose Science? Whose Knowledge?’* Equitable Partnerships and Diverse Teams for Just Genomic Research"
    Location: Forum B
    Corresponding Author: Shawneequa Callier, MA JD – The George Washington University
    Panelist: Lori B. Chibnik – Harvard University
    Panelist: Elise Li Zheng, PhD – Columbia University
    Panelist: Paul Meller, PhD (he/him/his) – Wellcome Trust
    Biobanking and genomic databasesCommunity engagementEquity and justice in genetics
  • Monday, Jun 10th
    1:30 PM – 3:00 PM ET
    Minoritized Community Recommendations for Ethical Conduct of Social Epigenomic Research
    Location: Hub 1
    Speaker: Courtney Berrios, MSc, ScM, CGC (she/her/hers) – Children's Mercy Kansas City
    Community engagementEquity and justice in genetics
  • Monday, Jun 10th
    3:30 PM – 5:00 PM ET
    Indigenous principlism in ELSI: Relational solidarity, data sovereignty and social justice
    Location: Forum B
    Corresponding Author: Vanessa Hiratsuka, PhD MPH (she/her/hers) – Southcentral Foundation
    Panelist: Julie Beans – Southcentral Foundation
    Panelist: Christie Byars – Chickasaw Nation
    Panelist: Joseph Yracheta – Native BioData Consortium
    Panelist: Jessica Blanchard, MA, PhD (she/her/hers) – University of Oklahoma
    Community engagementIndigenous communities collaboration
  • Monday, Jun 10th
    5:00 PM – 7:00 PM ET
    09- Deliberations about Genetics Research and Policy Concerns on the Navajo Nation
    Location: The Gallery
    Presenter: Luke Nez – University of California, Los Angeles
    Community engagementIndigenous communities collaboration
  • Monday, Jun 10th
    5:00 PM – 7:00 PM ET
    11- A qualitative study on the meaning of gene drive concept in a malaria trial context in Mali
    Location: The Gallery
    Presenter: Samba Diarra – Université des Sciences des Techniques et des Technologies de Bamako-Mali (Mali)
    Community engagementEducation and public understanding of genetic science
  • Monday, Jun 10th
    5:00 PM – 7:00 PM ET
    12- What is a Cure: Perspectives on the Meaning of Cure from within the Sickle Cell Disease Community
    Location: The Gallery
    Presenter: Marilyn S. Baffoe-Bonnie, PhD (she/her/hers) – National Institutes of Health
    Community engagement
  • Monday, Jun 10th
    5:00 PM – 7:00 PM ET
    13- Analyzing the Influence of Social Networks on Community-Based Participatory Research in the Creation of Gene Therapy Education Materials
    Location: The Gallery
    Presenter: Diba Seddighi (she/her/hers) – National Human Genome Research Institute, National Institute of Health
    Presenter: Tiffany Jackson
    Community engagementEquity and justice in genetics
  • Monday, Jun 10th
    5:00 PM – 7:00 PM ET
    14- Unveiling Eugenic Histories: A Digital Exploration of Injustice
    Location: The Gallery
    Co-Author: Gianna May Sanchez, PhD Candidate (she/her/hers) – University of Michigan
    Presenter: Carly Bobak – Dartmouth College
    Presenter: Jane Huang
    Presenter: Alexandra Stern (she/her/hers) – University of California, Los Angeles
    Presenter: Jacqueline Wernimont – Dartmouth College
    Community engagementEducation and public understanding of genetic scienceEquity and justice in genetics
  • Monday, Jun 10th
    5:00 PM – 7:00 PM ET
    15- Patient associations for genetic conditions and prenatal cell-free DNA screening: how their knowledge can contribute to pregnant people’s preparedness
    Location: The Gallery
    Presenter: Marie-Françoise Malo, MA (she/her/hers) – University of Montreal (Canada)
    Community engagementEducation and public understanding of genetic scienceGenetic counseling
  • Monday, Jun 10th
    5:00 PM – 7:00 PM ET
    16- Promoting Diverse Recruitment in Genomic Research: The Impact of Community Partnerships in the BabySeq Project
    Location: The Gallery
    Presenter: Sheyenne Walmsley, MS, CGC (she/her/hers) – Mass General Brigham
    Community engagement
  • Monday, Jun 10th
    5:00 PM – 7:00 PM ET
    17- Understanding ableism in grant application abstracts for genetic and genomic autism research
    Location: The Gallery
    Presenter: Chris Gunter, PhD (she/her/hers) – National Human Genome Research Institute, National Institute of Health
    Community engagementEducation and public understanding of genetic scienceEquity and justice in genetics
  • Monday, Jun 10th
    5:00 PM – 7:00 PM ET
    18- Advancing Restorative Justice through Clinical Genomics: A Multi-Stakeholder Framework to Ethically Integrate Gene Therapy for Sickle Cell Disease
    Location: The Gallery
    Presenter: Tessa Youngner, MS (she/her/hers) – Harvard University
    Community engagementEquity and justice in genetics
  • Monday, Jun 10th
    5:00 PM – 7:00 PM ET
    19-Examining the benefits of Participant Engagement in Cancer Genome Sequencing (PE-CGS): Progress to date of the PE-CGS Network
    Location: The Gallery
    Presenter: Anne Schuster, PhD (she/her/hers) – The Ohio State University
    Community engagementEquity and justice in genetics
  • Monday, Jun 10th
    5:00 PM – 7:00 PM ET
    20- Prioritization of research engaged with rare disease stakeholders: a systematic review and thematic analysis
    Location: The Gallery
    Presenter: Hannah Kim – Yonsei University (Republic of Korea)
    Community engagement
  • Monday, Jun 10th
    5:00 PM – 7:00 PM ET
    21- Qualitative Exploration of Diverse Participant Recruitment in NBSeq Research: Lessons from the BabySeq Project
    Location: The Gallery
    Presenter: Stacey Pereira, PhD (she/her/hers) – Baylor College of Medicine
    Community engagementEquity and justice in geneticsPerinatal and public health genetic screening
  • Monday, Jun 10th
    5:00 PM – 7:00 PM ET
    22- Ethical challenges of community-based organizations engaged in community-led research: a case study to inform future genomics and big health data research
    Location: The Gallery
    Presenter: Joon-Ho Yu, MPH, PhD (he/him/his) – University of Washington
    Community engagementEquity and justice in genetics
  • Tuesday, Jun 11th
    1:30 PM – 3:00 PM ET
    Paper Session E3
    Location: Hub 2
    Community engagement
  • Tuesday, Jun 11th
    1:30 PM – 3:00 PM ET
    Lessons on Working with Community Advisory Boards to Address Controversial Genomics Research
    Location: Hub 2
    Speaker: Sara Watson, MA – Mayo Clinic
    Community engagement
  • Tuesday, Jun 11th
    1:30 PM – 3:00 PM ET
    Nothing About Us Without Us: Sharing Relevant Results with Communities that Provide Genomic Data
    Location: Hub 2
    Community engagementEquity and justice in geneticsReturn of results and incidental findings
  • Tuesday, Jun 11th
    1:30 PM – 3:00 PM ET
    Reimagining reproductive autonomy in light of expanded genomic testing
    Location: Hub 2
    Speaker: Ainsley J. Newson, PhD (she/her/hers) – The University of Sydney (Australia)
    Community engagementGenetic counselingPerinatal and public health genetic screening
  • Tuesday, Jun 11th
    1:30 PM – 3:00 PM ET
    Justice is not being served: A critique of public engagement about human genome editing
    Location: Hub 2
    Speaker: Ryan Tonkens – Lakehead University (Canada)
    Community engagementEquity and justice in genetics
  • Tuesday, Jun 11th
    5:00 PM – 7:00 PM ET
    10- Engaging Multiracial Community in Genomics Research: What Does it Mean?
    Location: The Gallery
    Presenter: Jennifer L. Young, PhD, MA, MS (she/her/hers) – Northwestern University
    Community engagementEquity and justice in genetics
  • Wednesday, Jun 12th
    3:30 PM – 5:00 PM ET
    The ELSI of Engagement: Benefits and Challenges to Achieving a Just Genomics
    Location: Forum B
    Corresponding Author: Meghan Halley, PhD, MPH – Stanford Center for Biomedical Ethics
    Panelist: Ryan Fischer – Foundation for Angelman Syndrome Therapeutics
    Panelist: Daphne Martschenko, PhD – Stanford University
    Panelist: Jennifer L. Young, PhD, MA, MS (she/her/hers) – Northwestern University
    Panelist: AudreyStephannie Maghiro, AB (she/her/hers) – WUSM/Undiagnosed Diseases Network at Harvard Medical School
    Community engagementEquity and justice in genetics