Skip to main content
ELSIcon2024 Main banner
Icon Legend
This session is not in your schedule.
This session is in your schedule. Click again to remove it.

  1. Home

  • Monday, Jun 10th
    1:30 PM - 3:00 PM ET
    Rethinking the Rule Against Testing Children for Adult-Onset Conditions: A New Zealand Case Study
    Location: Hub 2
    Speaker: Josephine Johnston, LLB, MBHL (she/her/hers) – University of Otago and The Hastings Center
    Clinical genetic testingEquity and justice in genetics
  • Monday, Jun 10th
    1:30 PM - 3:00 PM ET
    Studying Perspectives of Parents and Treating Physicians about Rapid Genomic Sequencing in the Context of Neonatal and Pediatric Critical Care in a Canadian Setting
    Location: Hub 1
    Speaker: Guylaine D'Amours, MD, MSc (she/her/hers) – CHU Sainte-Justine (Canada)
    Clinical genetic testing
  • Monday, Jun 10th
    3:30 PM - 5:00 PM ET
    Attitudes On Law Enforcement Use Of Clinical Genetic Data
    Location: Hub 2
    Speaker: Sarah Duensing, JD (she/her/hers) – University of Utah
    Biobanking and genomic databasesLaw, regulation, and governance
  • Monday, Jun 10th
    5:00 PM - 7:00 PM ET
    03- Informed consent at scale: choice, privacy, and data-sharing strategies for a large, unselected research cohort
    Location: The Gallery
    Presenter: Sarah Elson, PhD (she/her/hers) – 23andMe, Inc.
    Biobanking and genomic databasesMethodology and study design
  • Monday, Jun 10th
    5:00 PM - 7:00 PM ET
    02- Sponsored Genetic Testing and Patient Decision Making
    Location: The Gallery
    Presenter: Emma Nelson, MS, MA (she/her/hers) – Case Western Reserve University
    Clinical genetic testingGenetic counseling
  • Tuesday, Jun 11th
    10:30 AM - 12:00 PM ET
    Patient Perspectives on the use of Polygenic Risk Scores in Psychiatry
    Location: Hub 1
    Speaker: Amanda R. Merner, PhD – Harvard University
    Return of results and incidental findings
  • Tuesday, Jun 11th
    3:30 PM - 5:00 PM ET
    The Ethics of “Traceback Testing”: Perspectives of First-Degree Relatives of Deceased Individuals on Privacy, Consent and Benefit.
    Location: Hub 1
    Speaker: Mikaella I. Caruncho, MSW, MPH (she/her/hers) – Columbia University
    Clinical genetic testing
  • Tuesday, Jun 11th
    3:30 PM - 5:00 PM ET
    Tumor Whole-Genome-Sequencing: ethical guidance on dealing with germline data
    Location: Hub 1
    Speaker: Noor Giesbertz, MD, PhD – Antoni van Leeuwenhoek Hospital (Netherlands)
    Clinical genetic testing
  • Tuesday, Jun 11th
    3:30 PM - 5:00 PM ET
    Legal Protections Against Genetic Discrimination: Awareness Among Adults and Adolescents with Psychiatric Conditions and Caregivers
    Location: Hub 1
    Speaker: Ana Lucia Battaglino, MA (she/her/hers) – Harvard University
    Clinical genetic testingLaw, regulation, and governance
  • Tuesday, Jun 11th
    5:00 PM - 7:00 PM ET
    24- Anticipating ELSI of the NIH Human Virome Program
    Location: The Gallery
    Presenter: Gail E. Henderson, PhD (she/her/hers) – University of North Carolina - Chapel Hill
    Biobanking and genomic databasesEducation and public understanding of genetic science
  • Tuesday, Jun 11th
    5:00 PM - 7:00 PM ET
    11- Exploring Patient Perceptions of Emerging Gene Therapies for Arrhythmogenic Right Ventricular Cardiomyopathy
    Location: The Gallery
    Presenter: Emma Schopp, ScM, LCGC (she/her/hers) – Uniformed Services University of the Health Sciences
    Methodology and study design
  • Tuesday, Jun 11th
    5:00 PM - 7:00 PM ET
    12- A Contextual Integrity Framework for Genomic Data
    Location: The Gallery
    Presenter: Nina de Groot, MA MS – VU University Amsterdam (Netherlands)
    Equity and justice in geneticsIndigenous communities collaboration
  • Wednesday, Jun 12th
    10:30 AM - 12:00 PM ET
    Cross-Disciplinary Research and Public Engagement on Eugenic Sterilization: Mixed Methods, Data Visualization, and Cross-State Comparisons
    Location: Forum B
    Moderator: Nicole Novak, PhD, MSc (she/her/hers) – University of Iowa
    Panelist: Heather Dron, PhD, MPH (she/her/hers) – University of California, Los Angeles
    Panelist: Kate O'Connor, MPH, MA (they/she) – University of Michigan
    Panelist: Alexandra Stern (she/her/hers) – University of California, Los Angeles