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Monday, Jun 10th
1:30 PM – 3:00 PM
ET
Proper Parents: Poverty, Disability, Race, and Reproductive Control after the Eugenics Era
Location: Forum A
Corresponding Author:
Natalie Lira
Panelist:
Jim Tabery, PhD
– University of Utah
Panelist:
Marie Kaniecki, MPH (she/her/hers)
– University of California Los Angeles
Panelist:
Jennifer James, PhD, MSW, MSSP
– University of California, San Francisco
Equity and justice in genetics
Reproductive genetics
Monday, Jun 10th
3:30 PM – 5:00 PM
ET
Ableism, Intersectionality and Justice in Genomic Science
Location: Forum A
Corresponding Author:
Maya Sabatello, LLB, PhD (she/her/hers)
– Columbia University
Panelist:
Chris Donohue
– National Human Genome Research Institute
Panelist:
Tracy King, MD, MPH (she/her/hers)
– Eunice Kennedy Shriver National Institute of Child Health and Human Development
Panelist:
Alejandra N. Aguirre
Equity and justice in genetics
Monday, Jun 10th
3:30 PM – 5:00 PM
ET
Analyzing Gamete Donation Screening Guidelines and Their Impact on Disability
Location: Hub 1
Speaker:
Hannah V. Carpenter, LLB, MA (she/her/hers)
– The University of Texas Medical Branch
Law, regulation, and governance
Reproductive genetics
Monday, Jun 10th
5:00 PM – 7:00 PM
ET
20- Prioritization of research engaged with rare disease stakeholders: a systematic review and thematic analysis
Location: The Gallery
Presenter:
Hannah Kim
– Yonsei University (Republic of Korea)
Community engagement
Monday, Jun 10th
5:00 PM – 7:00 PM
ET
23- Sociogenomic Friction in the Landscape of Neurodiversity
Location: The Gallery
Presenter:
Matthew Kucmanic, MA, MPH (he/him/his)
– University of Iowa
Tuesday, Jun 11th
1:30 PM – 3:00 PM
ET
Newborn Screening and Early Intervention
Location: Forum A
Corresponding Author:
Kyle B. Brothers, MD, PhD (he/him/his)
– Norton Children's Research Institute
Panelist:
Sara Ackerman, PhD MPH (she/her/hers)
– University of California, San Francisco
Panelist:
Amy A. Lemke, PhD MS (she/her/hers)
– Norton Children's Research Institute
Panelist:
Jeff Brosco, MD PhD
– Health Resources and Services Administration
Panelist:
Don Bailey, PhD (he/him/his)
– RTI International
Clinical genetic testing
Law, regulation, and governance
Wednesday, Jun 12th
10:30 AM – 12:00 PM
ET
Cross-Disciplinary Research and Public Engagement on Eugenic Sterilization: Mixed Methods, Data Visualization, and Cross-State Comparisons
Location: Forum B
Moderator:
Nicole Novak, PhD, MSc (she/her/hers)
– University of Iowa
Panelist:
Heather Dron, PhD, MPH (she/her/hers)
– University of California, Los Angeles
Panelist:
Kate O'Connor, MPH, MA (they/she)
– University of Michigan
Panelist:
Alexandra Stern (she/her/hers)
– University of California, Los Angeles
Wednesday, Jun 12th
10:30 AM – 12:00 PM
ET
Identifying and Dismantling Systemic Ableism in Prenatal Screening
Location: Hub 1
Speaker:
Stephanie Meredith, MA, DrPH (she/her/hers)
– University of Kentucky
Clinical genetic testing
Equity and justice in genetics
Wednesday, Jun 12th
1:30 PM – 3:00 PM
ET
Contemporary bioethics and policy changes for children with profound disabilities: Cardiac Surgery in Children with Trisomy 18
Location: Forum B
Corresponding Author:
Benjamin Wilfond, MD (he/him/his)
– Seattle Childrens Research Institute
Panelist:
Jennifer Castillo, JD
– Trisomy Collaborative
Panelist:
John Carey, MD, MPH, FAAP, FACMGG (he/him/his)
– University of Utah
Panelist:
Mark Mecurio
– Yale University
Panelist:
Katherine Kosiv, MD (she/her/hers)
– Yale University
Equity and justice in genetics