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Monday, Jun 10th
10:30 AM – 12:00 PM ET
Making Power Explicable in AI Development: Power preposition and Explainable AI (XAI) in Precision Medicine
Location: Hub 2
Speaker: Elise Li Zheng, PhD – Columbia University
AI and machine learningEquity and justice in genetics
Monday, Jun 10th
10:30 AM – 12:00 PM ET
A Framework for Equity in Genomic Medicine and Research
Location: Hub 1
Speaker: Trupti Patel, PhD (she/her/hers) – Genomics England (United Kingdom)
Equity and justice in geneticsIndigenous communities collaboration
Monday, Jun 10th
10:30 AM – 12:00 PM ET
Indigenous peoples and the benefits of genomic science: Need for a contexual approach in Africa
Location: Hub 1
Speaker: Faith Kabata – University of KwaZulu-Natal (South Africa)
Equity and justice in geneticsIndigenous communities collaborationLaw, regulation, and governance
Monday, Jun 10th
10:30 AM – 12:00 PM ET
Empowering Indigenous Voices: Assessing the Impact of the SING USA Workshop
Location: Hub 1
Speaker: Leah Nez, Post-Baccalaureate (she/her/hers) – University of Colorado Anschutz Medical Campus
Education and public understanding of genetic scienceEquity and justice in genetics
Monday, Jun 10th
1:30 PM – 3:00 PM ET
Paper Session B3
Location: Hub 2
Equity and justice in genetics
Monday, Jun 10th
1:30 PM – 3:00 PM ET
ELSI Considerations of Financial Assistance Programs at the Interface of the Interface of Payer Coverage for Genetic Testing
Location: Hub 2
Speaker: Emily Hammad Mrig, MA, PhD (she/her/hers) – University of California, San Francisco
Equity and justice in geneticsLaw, regulation, and governance
Monday, Jun 10th
1:30 PM – 3:00 PM ET
From liminality to liberation: FACTS as a case study for addressing VUSs and prioritizing equity in genomic medicine
Location: Hub 2
Speaker: Jennifer K. Wagner, JD PhD (she/her/hers) – Pennsylvania State University
Equity and justice in genetics
Monday, Jun 10th
1:30 PM – 3:00 PM ET
Proper Parents: Poverty, Disability, Race, and Reproductive Control after the Eugenics Era
Location: Forum A
Corresponding Author: Natalie Lira
Panelist: Jim Tabery, PhD – University of Utah
Panelist: Marie Kaniecki, MPH (she/her/hers) – University of California Los Angeles
Panelist: Jennifer James, PhD, MSW, MSSP – University of California, San Francisco
Equity and justice in geneticsReproductive genetics
Monday, Jun 10th
1:30 PM – 3:00 PM ET
"'Whose Science? Whose Knowledge?’* Equitable Partnerships and Diverse Teams for Just Genomic Research"
Location: Forum B
Corresponding Author: Shawneequa Callier, MA JD – The George Washington University
Panelist: Lori B. Chibnik – Harvard University
Panelist: Elise Li Zheng, PhD – Columbia University
Panelist: Paul Meller, PhD (he/him/his) – Wellcome Trust
Biobanking and genomic databasesCommunity engagementEquity and justice in genetics
Monday, Jun 10th
1:30 PM – 3:00 PM ET
Minoritized Community Recommendations for Ethical Conduct of Social Epigenomic Research
Location: Hub 1
Speaker: Courtney Berrios, MSc, ScM, CGC (she/her/hers) – Children's Mercy Kansas City
Community engagementEquity and justice in genetics
Monday, Jun 10th
1:30 PM – 3:00 PM ET
Rethinking the Rule Against Testing Children for Adult-Onset Conditions: A New Zealand Case Study
Location: Hub 2
Speaker: Josephine Johnston, LLB, MBHL (she/her/hers) – University of Otago and The Hastings Center
Clinical genetic testingEquity and justice in genetics
Monday, Jun 10th
3:30 PM – 5:00 PM ET
Incorporating Equity Considerations in Health Technology Assessment and Funding of Genome Medicine Technologies in Ontario, Canada
Location: Hub 1
Speaker: Wendy J. Ungar, MSc, PhD (she/her/hers) – The Hospital for Sick Children Research Institute (Canada)
Equity and justice in genetics
Monday, Jun 10th
3:30 PM – 5:00 PM ET
Prenatal Genetic counseling practice and training in the aftermath of the Dobbs v. Jackson Supreme Court Decision
Location: Hub 1
Speaker: Galen Joseph, PhD (she/her/hers) – University of California, San Francisco
Equity and justice in geneticsGenetic counselingReproductive genetics
Monday, Jun 10th
3:30 PM – 5:00 PM ET
Differences between private, government, and consortium data stewards and their impact on genetic research with diverse ancestral populations
Location: Hub 2
Speaker: Kayte Spector-Bagdady, JD, MBe (she/her/hers) – University of Michigan
Biobanking and genomic databasesEquity and justice in genetics
Monday, Jun 10th
3:30 PM – 5:00 PM ET
Ableism, Intersectionality and Justice in Genomic Science
Location: Forum A
Corresponding Author: Maya Sabatello, LLB, PhD (she/her/hers) – Columbia University
Panelist: Chris Donohue – National Human Genome Research Institute
Panelist: Tracy King, MD, MPH (she/her/hers) – Eunice Kennedy Shriver National Institute of Child Health and Human Development
Panelist: Alejandra N. Aguirre
Equity and justice in genetics
Monday, Jun 10th
3:30 PM – 5:00 PM ET
Federally Qualified Health Center All of Us Participants Conflating Research and Care
Location: Hub 2
Speaker: Danielle Pacia, MBE – The Hastings Center
Biobanking and genomic databasesEquity and justice in geneticsReturn of results and incidental findings
Monday, Jun 10th
5:00 PM – 7:00 PM ET
24- Genomic Science in the Era of Space Exploration
Location: The Gallery
Presenter: Roel Feys, PhD (he/him/his) – University of Miami
Equity and justice in genetics
Monday, Jun 10th
5:00 PM – 7:00 PM ET
04- Democratization and Cloud-Based Genomic Data Sharing: Views of Platform Developers and Early Adopters
Location: The Gallery
Presenter: Sarah C. Nelson, MPH, PhD (she/her/hers) – University of Washington
Biobanking and genomic databasesEquity and justice in genetics
Monday, Jun 10th
5:00 PM – 7:00 PM ET
13- Analyzing the Influence of Social Networks on Community-Based Participatory Research in the Creation of Gene Therapy Education Materials
Location: The Gallery
Presenter: Diba Seddighi (she/her/hers) – National Human Genome Research Institute, National Institute of Health
Presenter: Tiffany Jackson
Community engagementEquity and justice in genetics
Monday, Jun 10th
5:00 PM – 7:00 PM ET
14- Unveiling Eugenic Histories: A Digital Exploration of Injustice
Location: The Gallery
Co-Author: Gianna May Sanchez, PhD Candidate (she/her/hers) – University of Michigan
Presenter: Carly Bobak – Dartmouth College
Presenter: Jane Huang
Presenter: Alexandra Stern (she/her/hers) – University of California, Los Angeles
Presenter: Jacqueline Wernimont – Dartmouth College
Community engagementEducation and public understanding of genetic scienceEquity and justice in genetics
Monday, Jun 10th
5:00 PM – 7:00 PM ET
05- The promise of comprehensive retention and research use of residual newborn screening bloodspots
Location: The Gallery
Presenter: Erin Johnson, PhD – University of Utah
Biobanking and genomic databasesEquity and justice in genetics
Monday, Jun 10th
5:00 PM – 7:00 PM ET
37- Exploring the Immediate Impact of APOE ε4ε4 Genotype Disclosure among Latinos
Location: The Gallery
Presenter: Daniela Diaz Caro, MS, CGC (she/her/hers) – Columbia University
Clinical genetic testingEquity and justice in geneticsGenetic counseling
Monday, Jun 10th
5:00 PM – 7:00 PM ET
17- Understanding ableism in grant application abstracts for genetic and genomic autism research
Location: The Gallery
Presenter: Chris Gunter, PhD (she/her/hers) – National Human Genome Research Institute, National Institute of Health
Community engagementEducation and public understanding of genetic scienceEquity and justice in genetics
Monday, Jun 10th
5:00 PM – 7:00 PM ET
39- Developing the Patient-reported Genetic testing Utility InDEx (P-GUIDE): Assessing Value of Genetic Testing from Patients’ Perspectives in Multiple Clinical Contexts
Location: The Gallery
Presenter: Elise Poole, MHSc – The Hospital for Sick Children
Clinical genetic testingEquity and justice in geneticsGenetic counseling
Monday, Jun 10th
5:00 PM – 7:00 PM ET
18- Advancing Restorative Justice through Clinical Genomics: A Multi-Stakeholder Framework to Ethically Integrate Gene Therapy for Sickle Cell Disease
Location: The Gallery
Presenter: Tessa Youngner, MS (she/her/hers) – Harvard University
Community engagementEquity and justice in genetics
Monday, Jun 10th
5:00 PM – 7:00 PM ET
19-Examining the benefits of Participant Engagement in Cancer Genome Sequencing (PE-CGS): Progress to date of the PE-CGS Network
Location: The Gallery
Presenter: Anne Schuster, PhD (she/her/hers) – The Ohio State University
Community engagementEquity and justice in genetics
Monday, Jun 10th
5:00 PM – 7:00 PM ET
21- Qualitative Exploration of Diverse Participant Recruitment in NBSeq Research: Lessons from the BabySeq Project
Location: The Gallery
Presenter: Stacey Pereira, PhD (she/her/hers) – Baylor College of Medicine
Community engagementEquity and justice in geneticsPerinatal and public health genetic screening
Monday, Jun 10th
5:00 PM – 7:00 PM ET
22- Ethical challenges of community-based organizations engaged in community-led research: a case study to inform future genomics and big health data research
Location: The Gallery
Presenter: Joon-Ho Yu, MPH, PhD (he/him/his) – University of Washington
Community engagementEquity and justice in genetics
Monday, Jun 10th
5:00 PM – 7:00 PM ET
06- Responsible sharing to minimize harmful secondary use of large datasets
Location: The Gallery
Presenter: Pilar Ossorio, PhD, JD – University of Wisconsin
Biobanking and genomic databasesEquity and justice in geneticsLaw, regulation, and governance
Tuesday, Jun 11th
10:30 AM – 12:00 PM ET
Addressing inequity in genomics: Normative and pragmatic considerations in using distributional cost-effectiveness analysis to guide decision making
Location: Forum A
Corresponding Author: Hadley Smith, PhD, MPSA – Harvard University
Panelist: Jeroen Jansen, PhD (he/him/his) – University of California, San Francisco
Panelist: Shawn Winsor, MHSc, PhDc (he/him/his) – University of Toronto (Canada)
Panelist: Shawneequa Callier, MA JD – The George Washington University
Equity and justice in geneticsMethodology and study design
Tuesday, Jun 11th
1:30 PM – 3:00 PM ET
Nothing About Us Without Us: Sharing Relevant Results with Communities that Provide Genomic Data
Location: Hub 2
Speaker: Sarah LeBaron von Baeyer, PhD (she/her/hers) – Variant Bio
Community engagementEquity and justice in geneticsReturn of results and incidental findings
Tuesday, Jun 11th
1:30 PM – 3:00 PM ET
Implementation of genome-informed risk assessments for diverse and underrepresented populations: Lessons learned from the eMERGE IV study
Location: Forum B
Corresponding Author: Katherine Bonini, MS, MA, CGC (she/her/hers) – Mount Sinai Hospital
Panelist: Stephanie Malia Fullerton, DPhil (she/her/hers) – University of Washington
Panelist: Laura Rasmussen-Torvik, PhD, MPH (she/her/hers) – Northwestern University
Panelist: Harris T. Bland, MPH, MBA (he/him/his) – Vanderbilt University
Panelist: Margaret Harr, CGC, CAPM (she/her/hers) – Children’s Hospital of Philadelphia
Equity and justice in genetics
Tuesday, Jun 11th
1:30 PM – 3:00 PM ET
Justice is not being served: A critique of public engagement about human genome editing
Location: Hub 2
Speaker: Ryan Tonkens – Lakehead University (Canada)
Community engagementEquity and justice in genetics
Tuesday, Jun 11th
1:30 PM – 3:00 PM ET
Polygenic Prediction: How Scientists Navigate Uncertainty in an Emergent Field
Location: Hub 1
Speaker: Zachary Griffen, PhD (he/him/his) – New York University
Education and public understanding of genetic scienceEquity and justice in genetics
Tuesday, Jun 11th
3:30 PM – 5:00 PM ET
Improving care for marginalized populations at risk for hereditary cancer syndromes: Innovations that expanded genomic services’ reach in the CHARM study.
Location: Forum A
Corresponding Author: Benjamin Wilfond, MD (he/him/his) – Seattle Childrens Research Institute
Panelist: Stephanie Kraft, JD (she/her/hers) – Seattle Childrens Research Institute
Panelist: Sarah Knerr, PhD, MPH – University of Washington
Panelist: Galen Joseph, PhD (she/her/hers) – University of California, San Francisco
Clinical genetic testingEquity and justice in genetics
Tuesday, Jun 11th
5:00 PM – 7:00 PM ET
01- Who receives their genetic testing results? Exploring patient portal use and the implications of technological innovation
Location: The Gallery
Presenter: Xavier T. Williams, MS in Biomedical Engineering (he/him/his) – Case Western Reserve University
AI and machine learningEquity and justice in genetics
Tuesday, Jun 11th
5:00 PM – 7:00 PM ET
16- Genome-Wide Studies in Polycystic Ovary Syndrome and multiancestry analyses: a systematic review with equity in mind
Location: The Gallery
Presenter: Hridya C. Rao, MS, MA, BTech (she/her/hers) – Pennsylvania State University
Equity and justice in genetics
Tuesday, Jun 11th
5:00 PM – 7:00 PM ET
17- Project GIVE: Expanding Genetic Testing to Underserved Areas in the Rio Grande Valley Using an EHR-Agnostic Tele-Engagement Platform
Location: The Gallery
Presenter: Blake Vuocolo, MS, CGC (she/her/hers) – Baylor College of Medicine
Equity and justice in geneticsGenetic counseling
Tuesday, Jun 11th
5:00 PM – 7:00 PM ET
18- Re-Envisioning Translational Justice: Identifying Value-Based Policy Frameworks Supporting Prenatal Gene Editing
Location: The Gallery
Presenter: Rosario Isasi, JD, MPH – University of Miami
Equity and justice in geneticsLaw, regulation, and governance
Tuesday, Jun 11th
5:00 PM – 7:00 PM ET
12- A Contextual Integrity Framework for Genomic Data
Location: The Gallery
Presenter: Nina de Groot, MA MS – VU University Amsterdam (Netherlands)
Equity and justice in geneticsIndigenous communities collaboration
Tuesday, Jun 11th
5:00 PM – 7:00 PM ET
19- Reproductive decision-making in people with transfusion-dependent-thalassemia
Location: The Gallery
Presenter: Karolus Wangi, MS BSN RN (he/him/his) – Pennsylvania State University
Equity and justice in geneticsReproductive genetics
Tuesday, Jun 11th
5:00 PM – 7:00 PM ET
20- Información de la Enfermedad de Alzheimer para Latinos (IDEAL): A Study Framework for Alzheimer's Genetic Risk Disclosure in an Urban, Latino Population
Location: The Gallery
Presenter: Sophia Rodriguez, MS (she/her/hers) – Columbia University
Equity and justice in geneticsGenetic counselingMethodology and study design
Tuesday, Jun 11th
5:00 PM – 7:00 PM ET
21- Implementing a DNA strategy to reunify Ukrainian children separated from their families
Location: The Gallery
Presenter: Sara Huston, MS (she/her/hers) – Lurie Children's
Equity and justice in genetics
Tuesday, Jun 11th
5:00 PM – 7:00 PM ET
07- Regulation of data sharing in international genomics research: Ethical, social and legal implications
Location: The Gallery
Presenter: Deborah Ekusai Sebatta, MA (she/her/hers) – Makerere University (Uganda)
Biobanking and genomic databasesEquity and justice in geneticsLaw, regulation, and governance
Tuesday, Jun 11th
5:00 PM – 7:00 PM ET
15- Bridging the gap: a trainee-led effort to integrate ethics into graduate-level genetics education
Location: The Gallery
Presenter: Alvina Adimoelja (she/her/hers) – Stanford University
Education and public understanding of genetic scienceEquity and justice in genetics
Tuesday, Jun 11th
5:00 PM – 7:00 PM ET
10- Engaging Multiracial Community in Genomics Research: What Does it Mean?
Location: The Gallery
Presenter: Jennifer L. Young, PhD, MA, MS (she/her/hers) – Northwestern University
Community engagementEquity and justice in genetics
Tuesday, Jun 11th
5:00 PM – 7:00 PM ET
26- Considerations of Therapeutic Gene Editing on the Indigenous Population in Northern Ontario
Location: The Gallery
Presenter: Kara LeBlanc (she/her/hers) – Lakehead University (Canada)
Equity and justice in geneticsIndigenous communities collaboration
Tuesday, Jun 11th
5:00 PM – 7:00 PM ET
27- What counts as sex/gender and who decides? Policy analysis of US legal gender marker changes on identification documents
Location: The Gallery
Presenter: Emerson Dusic, MPH (they/them/theirs) – University of Washington
Equity and justice in genetics
Tuesday, Jun 11th
5:00 PM – 7:00 PM ET
22- Poster 1. The Ethics of Sequencing Every Baby at Birth: International Perspectives
Location: The Gallery
Presenter: Lisa Dive, PhD, MPhil, BA (she/her/hers) – University of Technology Sydney (Australia)
Equity and justice in geneticsPerinatal and public health genetic screening
Tuesday, Jun 11th
5:00 PM – 7:00 PM ET
23- Poster 2. The Ethics of Sequencing Every Baby at Birth: International Perspectives
Location: The Gallery
Presenter: Lisa Dive, PhD, MPhil, BA (she/her/hers) – University of Technology Sydney (Australia)
Equity and justice in geneticsPerinatal and public health genetic screening
Wednesday, Jun 12th
10:30 AM – 12:00 PM ET
Identifying and Dismantling Systemic Ableism in Prenatal Screening
Location: Hub 1
Speaker: Stephanie Meredith, MA, DrPH (she/her/hers) – University of Kentucky
Clinical genetic testingEquity and justice in genetics
Wednesday, Jun 12th
10:30 AM – 12:00 PM ET
Editing Future Generations, Centering Translational Justice: How Do Potential End Users Imagine the Benefits and Tradeoffs of Prenatal Genetic Therapies?
Location: Forum A
Corresponding Author: Julia Brown, PhD (she/her/hers) – University of California, San Francisco
Panelist: Marsha Michie, PhD (she/her/hers) – Case Western Reserve University School of Medicine
Panelist: Megan Allyse – Mayo Clinic
Panelist: Shameka Poetry Thomas, PhD (she/her/hers) – The Ohio State University-College of Medicine
Equity and justice in geneticsReproductive genetics
Wednesday, Jun 12th
1:30 PM – 3:00 PM ET
Paper Session H4
Location: Hub 1
Equity and justice in genetics
Wednesday, Jun 12th
1:30 PM – 3:00 PM ET
Genomics Research and Childhood Obesity through the Lenses of Equity: Reassessing Responsibilities and Costs between Families and Society
Location: Hub 1
Speaker: Ilaria Galasso, PhD – Technical University of Munich (Germany)
Equity and justice in geneticsPerinatal and public health genetic screening
Wednesday, Jun 12th
1:30 PM – 3:00 PM ET
ELSI of implementing clinical genetic testing in kidney disease and transplantation care
Location: Hub 1
Speaker: Tamar Schiff, MD (she/her/hers) – NYU Grossman School of Medicine
Biobanking and genomic databasesClinical genetic testingEquity and justice in genetics
Wednesday, Jun 12th
1:30 PM – 3:00 PM ET
Increasing Diversity in Genetic Databases: Lessons Learned from 20 Years of Slow Progress
Location: Hub 1
Presenter: Robert I. Field, JD, MPH, PhD – Drexel University
Biobanking and genomic databasesEquity and justice in genetics
Wednesday, Jun 12th
1:30 PM – 3:00 PM ET
Contemporary bioethics and policy changes for children with profound disabilities: Cardiac Surgery in Children with Trisomy 18
Location: Forum B
Corresponding Author: Benjamin Wilfond, MD (he/him/his) – Seattle Childrens Research Institute
Panelist: Jennifer Castillo, JD – Trisomy Collaborative
Panelist: John Carey, MD, MPH, FAAP, FACMGG (he/him/his) – University of Utah
Panelist: Mark Mecurio – Yale University
Panelist: Katherine Kosiv, MD (she/her/hers) – Yale University
Equity and justice in genetics
Wednesday, Jun 12th
3:30 PM – 5:00 PM ET
Paper Session J3
Location: Hub 2
Equity and justice in genetics
Wednesday, Jun 12th
3:30 PM – 5:00 PM ET
The ELSI of Engagement: Benefits and Challenges to Achieving a Just Genomics
Location: Forum B
Corresponding Author: Meghan Halley, PhD, MPH – Stanford Center for Biomedical Ethics
Panelist: Ryan Fischer – Foundation for Angelman Syndrome Therapeutics
Panelist: Daphne Martschenko, PhD – Stanford University
Panelist: Jennifer L. Young, PhD, MA, MS (she/her/hers) – Northwestern University
Panelist: AudreyStephannie Maghiro, AB (she/her/hers) – WUSM/Undiagnosed Diseases Network at Harvard Medical School
Community engagementEquity and justice in genetics
Wednesday, Jun 12th
3:30 PM – 5:00 PM ET
Assumptions of value: Exploring normative aspects of newborn genomic sequencing in decision analytic models
Location: Hub 2
Speaker: Madison R. Hickingbotham, MS – Harvard University
Equity and justice in geneticsMethodology and study designPerinatal and public health genetic screening
Wednesday, Jun 12th
3:30 PM – 5:00 PM ET
Re-envisioning Translational Equity in Pediatric Gene Therapy Research
Location: Hub 2
Speaker: Aaron Goldenberg, PhD MPH (he/him/his) – Case Western Reserve University School of Medecine
Equity and justice in genetics
Wednesday, Jun 12th
3:30 PM – 5:00 PM ET
The Legal Weaponization of Racialized DNA
Location: Hub 2
Speaker: Jonathan Kahn, JD, PhD (he/him/his) – Northeastern University
Equity and justice in geneticsLaw, regulation, and governance
Wednesday, Jun 12th
3:30 PM – 5:00 PM ET
Racial Politics and Health Equity in Genome-Editing Therapeutics
Location: Hub 2
Co-Author: Santiago J. Molina, PhD (he/they) – Northwestern University
Speaker: Melissa Creary, PhD, MPH
Equity and justice in genetics