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  • Monday, Jun 10th
    5:00 PM – 7:00 PM ET
    24- Genomic Science in the Era of Space Exploration
    Location: The Gallery
    Presenter: Roel Feys, PhD (he/him/his) – University of Miami
    Equity and justice in genetics
  • Monday, Jun 10th
    5:00 PM – 7:00 PM ET
    12- What is a Cure: Perspectives on the Meaning of Cure from within the Sickle Cell Disease Community
    Location: The Gallery
    Presenter: Marilyn S. Baffoe-Bonnie, PhD (she/her/hers) – National Institutes of Health
    Community engagement
  • Monday, Jun 10th
    5:00 PM – 7:00 PM ET
    18- Advancing Restorative Justice through Clinical Genomics: A Multi-Stakeholder Framework to Ethically Integrate Gene Therapy for Sickle Cell Disease
    Location: The Gallery
    Presenter: Tessa Youngner, MS (she/her/hers) – Harvard University
    Community engagementEquity and justice in genetics
  • Tuesday, Jun 11th
    1:30 PM – 3:00 PM ET
    Justice is not being served: A critique of public engagement about human genome editing
    Location: Hub 2
    Speaker: Ryan Tonkens – Lakehead University (Canada)
    Community engagementEquity and justice in genetics
  • Tuesday, Jun 11th
    3:30 PM – 5:00 PM ET
    The Ethics of “Traceback Testing”: Perspectives of First-Degree Relatives of Deceased Individuals on Privacy, Consent and Benefit.
    Location: Hub 1
    Speaker: Mikaella I. Caruncho, MSW, MPH (she/her/hers) – Columbia University
    Clinical genetic testing
  • Tuesday, Jun 11th
    5:00 PM – 7:00 PM ET
    18- Re-Envisioning Translational Justice: Identifying Value-Based Policy Frameworks Supporting Prenatal Gene Editing
    Location: The Gallery
    Presenter: Rosario Isasi, JD, MPH – University of Miami
    Equity and justice in geneticsLaw, regulation, and governance
  • Tuesday, Jun 11th
    5:00 PM – 7:00 PM ET
    11- Exploring Patient Perceptions of Emerging Gene Therapies for Arrhythmogenic Right Ventricular Cardiomyopathy
    Location: The Gallery
    Presenter: Emma Schopp, ScM, LCGC (she/her/hers) – Uniformed Services University of the Health Sciences
    Methodology and study design
  • Tuesday, Jun 11th
    5:00 PM – 7:00 PM ET
    26- Considerations of Therapeutic Gene Editing on the Indigenous Population in Northern Ontario
    Location: The Gallery
    Presenter: Kara LeBlanc (she/her/hers) – Lakehead University (Canada)
    Equity and justice in geneticsIndigenous communities collaboration
  • Wednesday, Jun 12th
    10:30 AM – 12:00 PM ET
    Editing Future Generations, Centering Translational Justice: How Do Potential End Users Imagine the Benefits and Tradeoffs of Prenatal Genetic Therapies?
    Location: Forum A
    Corresponding Author: Julia Brown, PhD (she/her/hers) – University of California, San Francisco
    Panelist: Marsha Michie, PhD (she/her/hers) – Case Western Reserve University School of Medicine
    Panelist: Megan Allyse – Mayo Clinic
    Panelist: Shameka Poetry Thomas, PhD (she/her/hers) – The Ohio State University-College of Medicine
    Equity and justice in geneticsReproductive genetics
  • Wednesday, Jun 12th
    3:30 PM – 5:00 PM ET
    Paper Session J4
    Location: Hub 1
  • Wednesday, Jun 12th
    3:30 PM – 5:00 PM ET
    Assessing the impacts of the major human genome editing (HGE) reports on the governance landscape
    Location: Hub 1
    Speaker: Gail E. Henderson, PhD (she/her/hers) – University of North Carolina - Chapel Hill
    Law, regulation, and governance
  • Wednesday, Jun 12th
    3:30 PM – 5:00 PM ET
    Key stakeholders’ moral attitudes on somatic gene editing for inherited cardiomyopathy: a qualitative interview study
    Location: Hub 1
    Speaker: Jannieke Simons, MA (she/her/hers) – University Medical Center Utrecht (Netherlands)
  • Wednesday, Jun 12th
    3:30 PM – 5:00 PM ET
    Re-envisioning Translational Equity in Pediatric Gene Therapy Research
    Location: Hub 2
    Speaker: Aaron Goldenberg, PhD MPH (he/him/his) – Case Western Reserve University School of Medecine
    Equity and justice in genetics
  • Wednesday, Jun 12th
    3:30 PM – 5:00 PM ET
    Governing Research on Reproductive Genomic Interventions: Priorities of Potential Research Participants from Sex and/or Gender Minorities
    Location: Hub 1
    Speaker: Harlie Dion Custer (she/her/hers) – Case Western Reserve University
    Reproductive genetics
  • Wednesday, Jun 12th
    3:30 PM – 5:00 PM ET
    Racial Politics and Health Equity in Genome-Editing Therapeutics
    Location: Hub 2
    Co-Author: Santiago J. Molina, PhD (he/they) – Northwestern University
    Speaker: Melissa Creary, PhD, MPH
    Equity and justice in genetics