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  • Monday, Jun 10th
    10:30 AM – 12:00 PM ET
    Indigenous peoples and the benefits of genomic science: Need for a contexual approach in Africa
    Location: Hub 1
    Speaker: Faith Kabata – University of KwaZulu-Natal (South Africa)
    Equity and justice in geneticsIndigenous communities collaborationLaw, regulation, and governance
  • Monday, Jun 10th
    10:30 AM – 12:00 PM ET
    Beneficial engagement with Indigenous Peoples: A survey of Tribal research governance in the United States
    Location: Hub 1
    Speaker: Ibrahim Garba, SJD (he/him/his) – University of Arizona
    Community engagementIndigenous communities collaborationLaw, regulation, and governance
  • Monday, Jun 10th
    1:30 PM – 3:00 PM ET
    ELSI Considerations of Financial Assistance Programs at the Interface of the Interface of Payer Coverage for Genetic Testing
    Location: Hub 2
    Speaker: Emily Hammad Mrig, MA, PhD (she/her/hers) – University of California, San Francisco
    Equity and justice in geneticsLaw, regulation, and governance
  • Monday, Jun 10th
    3:30 PM – 5:00 PM ET
    Attitudes On Law Enforcement Use Of Clinical Genetic Data
    Location: Hub 2
    Speaker: Sarah Duensing, JD (she/her/hers) – University of Utah
    Biobanking and genomic databasesLaw, regulation, and governance
  • Monday, Jun 10th
    3:30 PM – 5:00 PM ET
    Analyzing Gamete Donation Screening Guidelines and Their Impact on Disability
    Location: Hub 1
    Speaker: Hannah V. Carpenter, LLB, MA (she/her/hers) – The University of Texas Medical Branch
    Law, regulation, and governanceReproductive genetics
  • Monday, Jun 10th
    3:30 PM – 5:00 PM ET
    Behind the screens: A case study of misconceptions reflected in social media on the role of health-related consumer genomics services in IGG
    Location: Hub 2
    Speaker: Nathan Reed – Northwestern University
    Biobanking and genomic databasesLaw, regulation, and governance
  • Monday, Jun 10th
    5:00 PM – 7:00 PM ET
    34- Cross-Sectional Analysis of U.S. Health Insurance Payer Policies for Pharmacogenomic and Pharmacodynamic Testing for Psychiatric Therapies
    Location: The Gallery
    Presenter: Sandra E. Yankah, PhD (she/her/hers) – Duke Margolis Institute for Health Policy
    Presenter: Maryam Nafie – Duke University
    Clinical genetic testingLaw, regulation, and governance
  • Monday, Jun 10th
    5:00 PM – 7:00 PM ET
    06- Responsible sharing to minimize harmful secondary use of large datasets
    Location: The Gallery
    Presenter: Pilar Ossorio, PhD, JD – University of Wisconsin
    Biobanking and genomic databasesEquity and justice in geneticsLaw, regulation, and governance
  • Tuesday, Jun 11th
    1:30 PM – 3:00 PM ET
    Newborn Screening and Early Intervention
    Location: Forum A
    Corresponding Author: Kyle B. Brothers, MD, PhD (he/him/his) – Norton Children's Research Institute
    Panelist: Sara Ackerman, PhD MPH (she/her/hers) – University of California, San Francisco
    Panelist: Amy A. Lemke, PhD MS (she/her/hers) – Norton Children's Research Institute
    Panelist: Jeff Brosco, MD PhD – Health Resources and Services Administration
    Panelist: Don Bailey, PhD (he/him/his) – RTI International
    Clinical genetic testingLaw, regulation, and governance
  • Tuesday, Jun 11th
    3:30 PM – 5:00 PM ET
    Legal Protections Against Genetic Discrimination: Awareness Among Adults and Adolescents with Psychiatric Conditions and Caregivers
    Location: Hub 1
    Speaker: Ana Lucia Battaglino, MA (she/her/hers) – Harvard University
    Clinical genetic testingLaw, regulation, and governance
  • Tuesday, Jun 11th
    5:00 PM – 7:00 PM ET
    13- How Judges Decide: The Impact of Bio-Behavioral Sciences on Legal Decision-Making
    Location: The Gallery
    Presenter: Mia A. Thomaidou, PhD – Rutgers University
    Education and public understanding of genetic scienceLaw, regulation, and governance
  • Tuesday, Jun 11th
    5:00 PM – 7:00 PM ET
    18- Re-Envisioning Translational Justice: Identifying Value-Based Policy Frameworks Supporting Prenatal Gene Editing
    Location: The Gallery
    Presenter: Rosario Isasi, JD, MPH – University of Miami
    Equity and justice in geneticsLaw, regulation, and governance
  • Tuesday, Jun 11th
    5:00 PM – 7:00 PM ET
    07- Regulation of data sharing in international genomics research: Ethical, social and legal implications
    Location: The Gallery
    Presenter: Deborah Ekusai Sebatta, MA (she/her/hers) – Makerere University (Uganda)
    Biobanking and genomic databasesEquity and justice in geneticsLaw, regulation, and governance
  • Tuesday, Jun 11th
    5:00 PM – 7:00 PM ET
    08- Considerations on Sex Data Bias
    Location: The Gallery
    Presenter: Rebecca Sanaeikia, University of Rochester – University of Rochester
    Biobanking and genomic databasesLaw, regulation, and governance
  • Wednesday, Jun 12th
    1:30 PM – 3:00 PM ET
    Novel Nonmedical Uses of Genetic Information and Future Concerns
    Location: Forum A
    Corresponding Author: Christi Guerrini, JD, MPH (she/her/hers) – Baylor College of Medicine
    Moderator: Stephanie Malia Fullerton, DPhil (she/her/hers) – University of Washington
    Panelist: Sara Huston, MS (she/her/hers) – Lurie Children's
    Panelist: Jennifer K. Wagner, JD PhD (she/her/hers) – Pennsylvania State University
    Panelist: Jill O. Robinson, MA – Baylor College of Medicine
    Biobanking and genomic databasesLaw, regulation, and governance
  • Wednesday, Jun 12th
    1:30 PM – 3:00 PM ET
    The Failed Protection of Proposed Changes to HIPAA
    Location: Hub 1
    Speaker: Ellen Wright Clayton, JD, MD (she/her/hers) – Vanderbilt University
    Law, regulation, and governance
  • Wednesday, Jun 12th
    3:30 PM – 5:00 PM ET
    Assessing the impacts of the major human genome editing (HGE) reports on the governance landscape
    Location: Hub 1
    Speaker: Gail E. Henderson, PhD (she/her/hers) – University of North Carolina - Chapel Hill
    Law, regulation, and governance
  • Wednesday, Jun 12th
    3:30 PM – 5:00 PM ET
    The Legal Weaponization of Racialized DNA
    Location: Hub 2
    Speaker: Jonathan Kahn, JD, PhD (he/him/his) – Northeastern University
    Equity and justice in geneticsLaw, regulation, and governance