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Monday, Jun 10th
1:30 PM – 3:00 PM
ET
Attitudes, Values, Preferences, Oh My! What Stated Preference Methods Can Bring to ELSI Research
Location: Hub 2
Speaker:
Taylor Montgomery, MPH (she/her/hers)
– Harvard University
Methodology and study design
Monday, Jun 10th
5:00 PM – 7:00 PM
ET
03- Informed consent at scale: choice, privacy, and data-sharing strategies for a large, unselected research cohort
Location: The Gallery
Presenter:
Sarah Elson, PhD (she/her/hers)
– 23andMe, Inc.
Biobanking and genomic databases
Methodology and study design
Monday, Jun 10th
5:00 PM – 7:00 PM
ET
28- Understanding Preferences for Genetic Testing in Minoritized Populations: A Review of Heterogeneity Analyses in Stated Preference Research
Location: The Gallery
Presenter:
Taylor Montgomery, MPH (she/her/hers)
– Harvard University
Methodology and study design
Tuesday, Jun 11th
10:30 AM – 12:00 PM
ET
Addressing inequity in genomics: Normative and pragmatic considerations in using distributional cost-effectiveness analysis to guide decision making
Location: Forum A
Corresponding Author:
Hadley Smith, PhD, MPSA
– Harvard University
Panelist:
Jeroen Jansen, PhD (he/him/his)
– University of California, San Francisco
Panelist:
Shawn Winsor, MHSc, PhDc (he/him/his)
– University of Toronto (Canada)
Panelist:
Shawneequa Callier, MA JD
– The George Washington University
Equity and justice in genetics
Methodology and study design
Tuesday, Jun 11th
10:30 AM – 12:00 PM
ET
Digital solutions to deliver genomic medicine: Taking a closer look at what’s under the hood
Location: Hub 2
Corresponding Author:
Catharine Wang, PhD, MSc (she/her/hers)
– Boston University
Panelist:
Deborah Cragun, PhD, MS
– University of South Florida
Panelist:
Angela Bradbury
– University of Pennsylvania
Panelist:
Anita Kinney, PhD
– Rutgers University
Panelist:
Wendy Kohlmann
– University of Utah
Genetic counseling
Methodology and study design
Return of results and incidental findings
Tuesday, Jun 11th
5:00 PM – 7:00 PM
ET
14- Ethical Considerations in Measuring Genetic and Genomic Competence among Nurses: Insights from Survey Instruments
Location: The Gallery
Presenter:
Mari Laaksonen, MHS PhD student (she/her/hers)
– Tampere University (Finland)
Education and public understanding of genetic science
Methodology and study design
Tuesday, Jun 11th
5:00 PM – 7:00 PM
ET
11- Exploring Patient Perceptions of Emerging Gene Therapies for Arrhythmogenic Right Ventricular Cardiomyopathy
Location: The Gallery
Presenter:
Emma Schopp, ScM, LCGC (she/her/hers)
– Uniformed Services University of the Health Sciences
Methodology and study design
Tuesday, Jun 11th
5:00 PM – 7:00 PM
ET
20- Información de la Enfermedad de Alzheimer para Latinos (IDEAL): A Study Framework for Alzheimer's Genetic Risk Disclosure in an Urban, Latino Population
Location: The Gallery
Presenter:
Sophia Rodriguez, MS (she/her/hers)
– Columbia University
Equity and justice in genetics
Genetic counseling
Methodology and study design
Wednesday, Jun 12th
10:30 AM – 12:00 PM
ET
Experiential ethics training for genomic researchers
Location: Hub 2
Corresponding Author:
Quinn Waeiss, PhD (they/them/theirs)
– Stanford University
Panelist:
Ariadne Nichol, BA
– Stanford Center for Biomedical Ethics
Panelist:
David Magnus
– Stanford Center for Biomedical Ethics
Panelist:
Katie Shilton, PhD
– University of Maryland
Panelist:
Michael Bernstein
– Stanford University
AI and machine learning
Equity and justice in genetics
Methodology and study design
Wednesday, Jun 12th
3:30 PM – 5:00 PM
ET
Assumptions of value: Exploring normative aspects of newborn genomic sequencing in decision analytic models
Location: Hub 2
Speaker:
Madison R. Hickingbotham, MS
– Harvard University
Equity and justice in genetics
Methodology and study design
Perinatal and public health genetic screening
Wednesday, Jun 12th
3:30 PM – 5:00 PM
ET
Reporting practices for sexual and gender minority demographic information in NIH-supported genomic studies
Location: Hub 1
Speaker:
Zo Bly, BA (they/them/theirs)
– National Human Genome Research Institute, National Institute of Health
Methodology and study design