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AI and machine learning

Monday, Jun 10th

10:30 AM – 12:00 PM ET

Making Power Explicable in AI Development: Power preposition and Explainable AI (XAI) in Precision Medicine

Location: Hub 2

Speaker: Elise Li Zheng, PhD – Columbia University

AI and machine learningEquity and justice in genetics

Monday, Jun 10th

10:30 AM – 12:00 PM ET

ELSI Considerations for Integrating Multimodal Computer Perception and Neurotechnology

Location: Hub 2

Presenter: Meghan Hurley – Baylor College of Medicine

AI and machine learning

Monday, Jun 10th

10:30 AM – 12:00 PM ET

Understanding Physicians' Perceptions: AI-Enabled Pharmacogenomics for Mental Health Disorders

Location: Hub 2

Speaker: Austin M. Stroud, MA (he/him/his) – Mayo Clinic

AI and machine learningClinical genetic testing

Monday, Jun 10th

10:30 AM – 12:00 PM ET

Qualitative Analysis of Values-Based Design Group Exercises with Developers of Machine Learning for Precision Medicine

Location: Hub 2

Speaker: Ariadne Nichol, BA – Stanford Center for Biomedical Ethics

AI and machine learning

Tuesday, Jun 11th

10:30 AM – 12:00 PM ET

Artificial intelligence for precision medicine: How close to ‘personalized’ can we really get?

Location: Forum B

Corresponding Author: Carole Federico, MSc, PhD (she/her/hers) – Stanford University

Panelist: Kristin Kostick-Quenet – Baylor College of Medicine

Panelist: Nicole Martinez-Martin, JD, PhD (she/her/hers) – Stanford University

Panelist: Abdoul Jalil Djiberou Mahamadou, PhD (he/him/his) – Stanford University

AI and machine learning

Wednesday, Jun 12th

10:30 AM – 12:00 PM ET

Experiential ethics training for genomic researchers

Location: Hub 2

Corresponding Author: Quinn Waeiss, PhD (they/them/theirs) – Stanford University

Panelist: Ariadne Nichol, BA – Stanford Center for Biomedical Ethics

Panelist: David Magnus – Stanford Center for Biomedical Ethics

Panelist: Katie Shilton, PhD – University of Maryland

Panelist: Michael Bernstein – Stanford University

AI and machine learningEquity and justice in geneticsMethodology and study design

Biobanking and genomic databases

Monday, Jun 10th

10:30 AM – 12:00 PM ET

Identifying and Combating the Threat and Enhancing the Promise of Social and Behavioral Genomics

Location: Forum B

Corresponding Author: Anya Prince – University of Iowa

Speaker: Jean Cadigan, PhD

Panelist: Lucas J. Matthews, PHD (he/him/his) – Columbia University

Panelist: Kriste Kuczynski (she/her/hers) – University of North Carolina - Chapel Hill

Panelist: Daphne Martschenko, PhD – Stanford University

Biobanking and genomic databases

Monday, Jun 10th

1:30 PM – 3:00 PM ET

"'Whose Science? Whose Knowledge?’* Equitable Partnerships and Diverse Teams for Just Genomic Research"

Location: Forum B

Corresponding Author: Shawneequa Callier, MA JD – The George Washington University

Panelist: Lori B. Chibnik – Harvard University

Panelist: Elise Li Zheng, PhD – Columbia University

Panelist: Paul Meller, PhD (he/him/his) – Wellcome Trust

Biobanking and genomic databasesCommunity engagementEquity and justice in genetics

Monday, Jun 10th

3:30 PM – 5:00 PM ET

Attitudes On Law Enforcement Use Of Clinical Genetic Data

Location: Hub 2

Speaker: Sarah Duensing, JD (she/her/hers) – University of Utah

Biobanking and genomic databasesLaw, regulation, and governance

Monday, Jun 10th

3:30 PM – 5:00 PM ET

Differences between private, government, and consortium data stewards and their impact on genetic research with diverse ancestral populations

Location: Hub 2

Speaker: Kayte Spector-Bagdady, JD, MBe (she/her/hers) – University of Michigan

Biobanking and genomic databasesEquity and justice in genetics

Monday, Jun 10th

3:30 PM – 5:00 PM ET

Behind the screens: A case study of misconceptions reflected in social media on the role of health-related consumer genomics services in IGG

Location: Hub 2

Speaker: Nathan Reed – Northwestern University

Biobanking and genomic databasesLaw, regulation, and governance

Monday, Jun 10th

3:30 PM – 5:00 PM ET

Federally Qualified Health Center All of Us Participants Conflating Research and Care

Location: Hub 2

Speaker: Danielle Pacia, MBE – The Hastings Center

Biobanking and genomic databasesEquity and justice in geneticsReturn of results and incidental findings

Wednesday, Jun 12th

1:30 PM – 3:00 PM ET

ELSI of implementing clinical genetic testing in kidney disease and transplantation care

Location: Hub 1

Speaker: Tamar Schiff, MD (she/her/hers) – NYU Grossman School of Medicine

Biobanking and genomic databasesClinical genetic testingEquity and justice in genetics

Wednesday, Jun 12th

1:30 PM – 3:00 PM ET

Increasing Diversity in Genetic Databases: Lessons Learned from 20 Years of Slow Progress

Location: Hub 1

Presenter: Robert I. Field, JD, MPH, PhD – Drexel University

Biobanking and genomic databasesEquity and justice in genetics

Wednesday, Jun 12th

1:30 PM – 3:00 PM ET

Novel Nonmedical Uses of Genetic Information and Future Concerns

Location: Forum A

Corresponding Author: Christi Guerrini, JD, MPH (she/her/hers) – Baylor College of Medicine

Moderator: Stephanie Malia Fullerton, DPhil (she/her/hers) – University of Washington

Panelist: Sara Huston, MS (she/her/hers) – Lurie Children's

Panelist: Jennifer K. Wagner, JD PhD (she/her/hers) – Pennsylvania State University

Panelist: Jill O. Robinson, MA – Baylor College of Medicine

Biobanking and genomic databasesLaw, regulation, and governance

Clinical genetic testing

Monday, Jun 10th

10:30 AM – 12:00 PM ET

Understanding Physicians' Perceptions: AI-Enabled Pharmacogenomics for Mental Health Disorders

Location: Hub 2

Speaker: Austin M. Stroud, MA (he/him/his) – Mayo Clinic

AI and machine learningClinical genetic testing

Monday, Jun 10th

1:30 PM – 3:00 PM ET

Rethinking the Rule Against Testing Children for Adult-Onset Conditions: A New Zealand Case Study

Location: Hub 2

Speaker: Josephine Johnston, LLB, MBHL (she/her/hers) – University of Otago and The Hastings Center

Clinical genetic testingEquity and justice in genetics

Monday, Jun 10th

1:30 PM – 3:00 PM ET

Studying Perspectives of Parents and Treating Physicians about Rapid Genomic Sequencing in the Context of Neonatal and Pediatric Critical Care in a Canadian Setting

Location: Hub 1

Speaker: Guylaine D'Amours, MD, MSc (she/her/hers) – CHU Sainte-Justine (Canada)

Clinical genetic testing

Tuesday, Jun 11th

10:30 AM – 12:00 PM ET

PRAGMatIQ study - Rapid whole-genome sequencing in children in acute care in a universal health care system: Physicians underestimate parental expectations and concerns

Location: Hub 1

Speaker: Claudia Azuelos, MD (she/her/hers) – Université de Montréal and CHU Ste-Justine (Canada)

Clinical genetic testingReturn of results and incidental findings

Tuesday, Jun 11th

10:30 AM – 12:00 PM ET

Prenatal genetic information as preparation: Parents and clinicians reimagining benefits for families and future children

Location: Hub 1

Speaker: Sabina Rubeck, MPH – Case Western Reserve University

Clinical genetic testingPerinatal and public health genetic screeningReproductive genetics

Tuesday, Jun 11th

10:30 AM – 12:00 PM ET

Clinician Perspectives on Polygenic Risk Scores in Child and Adolescent Psychiatry: Current Concerns and Future Utility

Location: Hub 1

Speaker: Page M. Trotter, MPH (she/her/hers) – Baylor College of Medicine

Clinical genetic testingReturn of results and incidental findings

Tuesday, Jun 11th

1:30 PM – 3:00 PM ET

Newborn Screening and Early Intervention

Location: Forum A

Corresponding Author: Kyle B. Brothers, MD, PhD (he/him/his) – Norton Children's Research Institute

Panelist: Sara Ackerman, PhD MPH (she/her/hers) – University of California, San Francisco

Panelist: Amy A. Lemke, PhD MS (she/her/hers) – Norton Children's Research Institute

Panelist: Jeff Brosco, MD PhD – Health Resources and Services Administration

Panelist: Don Bailey, PhD (he/him/his) – RTI International

Clinical genetic testingLaw, regulation, and governance

Tuesday, Jun 11th

3:30 PM – 5:00 PM ET

Impact of Returning Genomic Results Related to Adult-Onset Conditions to Pediatric Patients

Location: Hub 1

Speaker: Adam Buchanan, MS, MPH, CGC (he/him/his) – Geisinger College of Health Sciences

Clinical genetic testingReturn of results and incidental findings

Tuesday, Jun 11th

3:30 PM – 5:00 PM ET

Improving care for marginalized populations at risk for hereditary cancer syndromes: Innovations that expanded genomic services’ reach in the CHARM study.

Location: Forum A

Corresponding Author: Benjamin Wilfond, MD (he/him/his) – Seattle Childrens Research Institute

Panelist: Stephanie Kraft, JD (she/her/hers) – Seattle Childrens Research Institute

Panelist: Sarah Knerr, PhD, MPH – University of Washington

Panelist: Galen Joseph, PhD (she/her/hers) – University of California, San Francisco

Clinical genetic testingEquity and justice in genetics

Tuesday, Jun 11th

3:30 PM – 5:00 PM ET

Global Perspectives on Implementing Clinical Genomic Sequencing Equitably, Effectively and Efficiently

Location: Forum B

Corresponding Author: Deborah A. Marshall, PhD (she/her/hers) – The University of Calgary (Canada)

Panelist: Kathryn Phillips, PhD (she/her/hers) – University of California, San Francisco

Panelist: Kurt D. Christensen, PhD (he/him/his) – Harvard University

Panelist: Wendy J. Ungar, MSc, PhD (she/her/hers) – The Hospital for Sick Children Research Institute (Canada)

Panelist: James Buchanan, MA, DPhil (he/him/his) – Queen Mary University of London (United Kingdom)

Clinical genetic testing

Tuesday, Jun 11th

3:30 PM – 5:00 PM ET

The Ethics of “Traceback Testing”: Perspectives of First-Degree Relatives of Deceased Individuals on Privacy, Consent and Benefit.

Location: Hub 1

Speaker: Mikaella I. Caruncho, MSW, MPH (she/her/hers) – Columbia University

Clinical genetic testing

Tuesday, Jun 11th

3:30 PM – 5:00 PM ET

Tumor Whole-Genome-Sequencing: ethical guidance on dealing with germline data

Location: Hub 1

Speaker: Noor Giesbertz, MD, PhD – Antoni van Leeuwenhoek Hospital (Netherlands)

Clinical genetic testing

Tuesday, Jun 11th

3:30 PM – 5:00 PM ET

Legal Protections Against Genetic Discrimination: Awareness Among Adults and Adolescents with Psychiatric Conditions and Caregivers

Location: Hub 1

Speaker: Ana Lucia Battaglino, MA (she/her/hers) – Harvard University

Clinical genetic testingLaw, regulation, and governance

Wednesday, Jun 12th

10:30 AM – 12:00 PM ET

Patient perceptions of duties and responsibilities in variant reclassification and recontact process: A modified cognitive interview study

Location: Hub 1

Speaker: Sukh Makhnoon, PhD, MS – University of Texas Southwestern Medical Center

Clinical genetic testingReturn of results and incidental findings

Wednesday, Jun 12th

10:30 AM – 12:00 PM ET

“I have data, I have science behind my treatment plan”: A qualitative study of clinician and patient views and experiences with pharmacogenomic testing for depression

Location: Hub 1

Speaker: Katherine Hendy, PhD (she/her/hers) – University of Michigan

Clinical genetic testing

Wednesday, Jun 12th

10:30 AM – 12:00 PM ET

Identifying and Dismantling Systemic Ableism in Prenatal Screening

Location: Hub 1

Speaker: Stephanie Meredith, MA, DrPH (she/her/hers) – University of Kentucky

Clinical genetic testingEquity and justice in genetics

Wednesday, Jun 12th

10:30 AM – 12:00 PM ET

Psychiatric Polygenic Risk Scores in Reproductive Decision-Making: Perspectives from Adults with Psychiatric Conditions

Location: Hub 1

Speaker: Ana Lucia Battaglino, MA (she/her/hers) – Harvard University

Clinical genetic testingReproductive genetics

Wednesday, Jun 12th

1:30 PM – 3:00 PM ET

ELSI of implementing clinical genetic testing in kidney disease and transplantation care

Location: Hub 1

Speaker: Tamar Schiff, MD (she/her/hers) – NYU Grossman School of Medicine

Biobanking and genomic databasesClinical genetic testingEquity and justice in genetics

Wednesday, Jun 12th

3:30 PM – 5:00 PM ET

From Person-Centered to Family-Centered: Navigating Practical and Ethical Issues in Health System-Led Contact for Cascade Screening

Location: Forum A

Panelist: Leila Jamal, ScM, PhD, LGC (she/her/hers) – National Cancer Institute and NIH Bioethics Department

Panelist: Katherine Bonini, MS, MA, CGC (she/her/hers) – Mount Sinai Hospital

Panelist: Nora B. Henrikson – Kaiser Permanente Washington

Moderator: Emily Bonkowski, ScM, CGC (she/her/hers) – St. Jude Children's Research Hospital

Clinical genetic testing

Community engagement

Monday, Jun 10th

10:30 AM – 12:00 PM ET

Beneficial engagement with Indigenous Peoples: A survey of Tribal research governance in the United States

Location: Hub 1

Speaker: Ibrahim Garba, SJD (he/him/his) – University of Arizona

Community engagementIndigenous communities collaborationLaw, regulation, and governance

Monday, Jun 10th

1:30 PM – 3:00 PM ET

Exploring Ethical Dialogues in genomics research: A Qualitative Analysis of the Drama of DNA Method in South Africa.

Location: Hub 1

Speaker: Lebogang Montewa, MPH (she/her/hers) – University of Cape Town (South Africa)

Community engagementEducation and public understanding of genetic scienceReturn of results and incidental findings

Monday, Jun 10th

1:30 PM – 3:00 PM ET

Learning Together about Genetics: Insights from a Community-University Partnership

Location: Hub 1

Speaker: Susan Brown Trinidad, MA, PhD (she/her/hers) – University of Washington

Community engagementIndigenous communities collaboration

Monday, Jun 10th

1:30 PM – 3:00 PM ET

"'Whose Science? Whose Knowledge?’* Equitable Partnerships and Diverse Teams for Just Genomic Research"

Location: Forum B

Corresponding Author: Shawneequa Callier, MA JD – The George Washington University

Panelist: Lori B. Chibnik – Harvard University

Panelist: Elise Li Zheng, PhD – Columbia University

Panelist: Paul Meller, PhD (he/him/his) – Wellcome Trust

Biobanking and genomic databasesCommunity engagementEquity and justice in genetics

Monday, Jun 10th

1:30 PM – 3:00 PM ET

Minoritized Community Recommendations for Ethical Conduct of Social Epigenomic Research

Location: Hub 1

Speaker: Courtney Berrios, MSc, ScM, CGC (she/her/hers) – Children's Mercy Kansas City

Community engagementEquity and justice in genetics

Monday, Jun 10th

3:30 PM – 5:00 PM ET

Indigenous principlism in ELSI: Relational solidarity, data sovereignty and social justice

Location: Forum B

Corresponding Author: Vanessa Hiratsuka, PhD MPH (she/her/hers) – Southcentral Foundation

Panelist: Julie Beans – Southcentral Foundation

Panelist: Christie Byars – Chickasaw Nation

Panelist: Joseph Yracheta – Native BioData Consortium

Panelist: Jessica Blanchard, MA, PhD (she/her/hers) – University of Oklahoma

Community engagementIndigenous communities collaboration

Tuesday, Jun 11th

1:30 PM – 3:00 PM ET

Lessons on Working with Community Advisory Boards to Address Controversial Genomics Research

Location: Hub 2

Speaker: Sara Watson, MA – Mayo Clinic

Community engagement

Tuesday, Jun 11th

1:30 PM – 3:00 PM ET

Nothing About Us Without Us: Sharing Relevant Results with Communities that Provide Genomic Data

Location: Hub 2

Speaker: Sarah LeBaron von Baeyer, PhD (she/her/hers) – Variant Bio

Community engagementEquity and justice in geneticsReturn of results and incidental findings

Tuesday, Jun 11th

1:30 PM – 3:00 PM ET

Reimagining reproductive autonomy in light of expanded genomic testing

Location: Hub 2

Speaker: Ainsley J. Newson, PhD (she/her/hers) – The University of Sydney (Australia)

Community engagementGenetic counselingPerinatal and public health genetic screening

Tuesday, Jun 11th

1:30 PM – 3:00 PM ET

Justice is not being served: A critique of public engagement about human genome editing

Location: Hub 2

Speaker: Ryan Tonkens – Lakehead University (Canada)

Community engagementEquity and justice in genetics

Wednesday, Jun 12th

3:30 PM – 5:00 PM ET

The ELSI of Engagement: Benefits and Challenges to Achieving a Just Genomics

Location: Forum B

Corresponding Author: Meghan Halley, PhD, MPH – Stanford Center for Biomedical Ethics

Panelist: Ryan Fischer – Foundation for Angelman Syndrome Therapeutics

Panelist: Daphne Martschenko, PhD – Stanford University

Panelist: Jennifer L. Young, PhD, MA, MS (she/her/hers) – Northwestern University

Panelist: AudreyStephannie Maghiro, AB (she/her/hers) – WUSM/Undiagnosed Diseases Network at Harvard Medical School

Community engagementEquity and justice in genetics

Consent

Monday, Jun 10th

1:30 PM – 3:00 PM ET

Rethinking the Rule Against Testing Children for Adult-Onset Conditions: A New Zealand Case Study

Location: Hub 2

Speaker: Josephine Johnston, LLB, MBHL (she/her/hers) – University of Otago and The Hastings Center

Clinical genetic testingEquity and justice in genetics

Monday, Jun 10th

1:30 PM – 3:00 PM ET

Studying Perspectives of Parents and Treating Physicians about Rapid Genomic Sequencing in the Context of Neonatal and Pediatric Critical Care in a Canadian Setting

Location: Hub 1

Speaker: Guylaine D'Amours, MD, MSc (she/her/hers) – CHU Sainte-Justine (Canada)

Clinical genetic testing

Monday, Jun 10th

3:30 PM – 5:00 PM ET

Attitudes On Law Enforcement Use Of Clinical Genetic Data

Location: Hub 2

Speaker: Sarah Duensing, JD (she/her/hers) – University of Utah

Biobanking and genomic databasesLaw, regulation, and governance

Tuesday, Jun 11th

10:30 AM – 12:00 PM ET

Patient Perspectives on the use of Polygenic Risk Scores in Psychiatry

Location: Hub 1

Speaker: Amanda R. Merner, PhD – Harvard University

Return of results and incidental findings

Tuesday, Jun 11th

3:30 PM – 5:00 PM ET

The Ethics of “Traceback Testing”: Perspectives of First-Degree Relatives of Deceased Individuals on Privacy, Consent and Benefit.

Location: Hub 1

Speaker: Mikaella I. Caruncho, MSW, MPH (she/her/hers) – Columbia University

Clinical genetic testing

Tuesday, Jun 11th

3:30 PM – 5:00 PM ET

Tumor Whole-Genome-Sequencing: ethical guidance on dealing with germline data

Location: Hub 1

Speaker: Noor Giesbertz, MD, PhD – Antoni van Leeuwenhoek Hospital (Netherlands)

Clinical genetic testing

Tuesday, Jun 11th

3:30 PM – 5:00 PM ET

Legal Protections Against Genetic Discrimination: Awareness Among Adults and Adolescents with Psychiatric Conditions and Caregivers

Location: Hub 1

Speaker: Ana Lucia Battaglino, MA (she/her/hers) – Harvard University

Clinical genetic testingLaw, regulation, and governance

Wednesday, Jun 12th

10:30 AM – 12:00 PM ET

Cross-Disciplinary Research and Public Engagement on Eugenic Sterilization: Mixed Methods, Data Visualization, and Cross-State Comparisons

Location: Forum B

Moderator: Nicole Novak, PhD, MSc (she/her/hers) – University of Iowa

Panelist: Heather Dron, PhD, MPH (she/her/hers) – University of California, Los Angeles

Panelist: Kate O'Connor, MPH, MA (they/she) – University of Michigan

Panelist: Alexandra Stern (she/her/hers) – University of California, Los Angeles

Disability

Monday, Jun 10th

1:30 PM – 3:00 PM ET

Proper Parents: Poverty, Disability, Race, and Reproductive Control after the Eugenics Era

Location: Forum A

Corresponding Author: Natalie Lira

Panelist: Jim Tabery, PhD – University of Utah

Panelist: Marie Kaniecki, MPH (she/her/hers) – University of California Los Angeles

Panelist: Jennifer James, PhD, MSW, MSSP – University of California, San Francisco

Equity and justice in geneticsReproductive genetics

Monday, Jun 10th

3:30 PM – 5:00 PM ET

Ableism, Intersectionality and Justice in Genomic Science

Location: Forum A

Corresponding Author: Maya Sabatello, LLB, PhD (she/her/hers) – Columbia University

Panelist: Chris Donohue – National Human Genome Research Institute

Panelist: Tracy King, MD, MPH (she/her/hers) – Eunice Kennedy Shriver National Institute of Child Health and Human Development

Panelist: Alejandra N. Aguirre

Equity and justice in genetics

Monday, Jun 10th

3:30 PM – 5:00 PM ET

Analyzing Gamete Donation Screening Guidelines and Their Impact on Disability

Location: Hub 1

Speaker: Hannah V. Carpenter, LLB, MA (she/her/hers) – The University of Texas Medical Branch

Law, regulation, and governanceReproductive genetics

Tuesday, Jun 11th

1:30 PM – 3:00 PM ET

Newborn Screening and Early Intervention

Location: Forum A

Corresponding Author: Kyle B. Brothers, MD, PhD (he/him/his) – Norton Children's Research Institute

Panelist: Sara Ackerman, PhD MPH (she/her/hers) – University of California, San Francisco

Panelist: Amy A. Lemke, PhD MS (she/her/hers) – Norton Children's Research Institute

Panelist: Jeff Brosco, MD PhD – Health Resources and Services Administration

Panelist: Don Bailey, PhD (he/him/his) – RTI International

Clinical genetic testingLaw, regulation, and governance

Wednesday, Jun 12th

10:30 AM – 12:00 PM ET

Cross-Disciplinary Research and Public Engagement on Eugenic Sterilization: Mixed Methods, Data Visualization, and Cross-State Comparisons

Location: Forum B

Moderator: Nicole Novak, PhD, MSc (she/her/hers) – University of Iowa

Panelist: Heather Dron, PhD, MPH (she/her/hers) – University of California, Los Angeles

Panelist: Kate O'Connor, MPH, MA (they/she) – University of Michigan

Panelist: Alexandra Stern (she/her/hers) – University of California, Los Angeles

Wednesday, Jun 12th

10:30 AM – 12:00 PM ET

Identifying and Dismantling Systemic Ableism in Prenatal Screening

Location: Hub 1

Speaker: Stephanie Meredith, MA, DrPH (she/her/hers) – University of Kentucky

Clinical genetic testingEquity and justice in genetics

Wednesday, Jun 12th

1:30 PM – 3:00 PM ET

Contemporary bioethics and policy changes for children with profound disabilities: Cardiac Surgery in Children with Trisomy 18

Location: Forum B

Corresponding Author: Benjamin Wilfond, MD (he/him/his) – Seattle Childrens Research Institute

Panelist: Jennifer Castillo, JD – Trisomy Collaborative

Panelist: John Carey, MD, MPH, FAAP, FACMGG (he/him/his) – University of Utah

Panelist: Mark Mecurio – Yale University

Panelist: Katherine Kosiv, MD (she/her/hers) – Yale University

Equity and justice in genetics

Education and public understanding of genetic science

Monday, Jun 10th

10:30 AM – 12:00 PM ET

Empowering Indigenous Voices: Assessing the Impact of the SING USA Workshop

Location: Hub 1

Speaker: Leah Nez, Post-Baccalaureate (she/her/hers) – University of Colorado Anschutz Medical Campus

Education and public understanding of genetic scienceEquity and justice in genetics

Monday, Jun 10th

1:30 PM – 3:00 PM ET

Exploring Ethical Dialogues in genomics research: A Qualitative Analysis of the Drama of DNA Method in South Africa.

Location: Hub 1

Speaker: Lebogang Montewa, MPH (she/her/hers) – University of Cape Town (South Africa)

Community engagementEducation and public understanding of genetic scienceReturn of results and incidental findings

Tuesday, Jun 11th

1:30 PM – 3:00 PM ET

Polygenic Embryo Screening: High Approval Despite Substantial Concerns from the U.S. Public

Location: Hub 1

Speaker: Rémy Furrer, PhD – Harvard University

Education and public understanding of genetic scienceReproductive genetics

Tuesday, Jun 11th

1:30 PM – 3:00 PM ET

Polygenic Prediction: How Scientists Navigate Uncertainty in an Emergent Field

Location: Hub 1

Speaker: Zachary Griffen, PhD (he/him/his) – New York University

Education and public understanding of genetic scienceEquity and justice in genetics

Equity and justice in genetics

Monday, Jun 10th

10:30 AM – 12:00 PM ET

Making Power Explicable in AI Development: Power preposition and Explainable AI (XAI) in Precision Medicine

Location: Hub 2

Speaker: Elise Li Zheng, PhD – Columbia University

AI and machine learningEquity and justice in genetics

Monday, Jun 10th

10:30 AM – 12:00 PM ET

A Framework for Equity in Genomic Medicine and Research

Location: Hub 1

Speaker: Trupti Patel, PhD (she/her/hers) – Genomics England (United Kingdom)

Equity and justice in geneticsIndigenous communities collaboration

Monday, Jun 10th

10:30 AM – 12:00 PM ET

Indigenous peoples and the benefits of genomic science: Need for a contexual approach in Africa

Location: Hub 1

Speaker: Faith Kabata – University of KwaZulu-Natal (South Africa)

Equity and justice in geneticsIndigenous communities collaborationLaw, regulation, and governance

Monday, Jun 10th

10:30 AM – 12:00 PM ET

Empowering Indigenous Voices: Assessing the Impact of the SING USA Workshop

Location: Hub 1

Speaker: Leah Nez, Post-Baccalaureate (she/her/hers) – University of Colorado Anschutz Medical Campus

Education and public understanding of genetic scienceEquity and justice in genetics

Monday, Jun 10th

1:30 PM – 3:00 PM ET

ELSI Considerations of Financial Assistance Programs at the Interface of the Interface of Payer Coverage for Genetic Testing

Location: Hub 2

Speaker: Emily Hammad Mrig, MA, PhD (she/her/hers) – University of California, San Francisco

Equity and justice in geneticsLaw, regulation, and governance

Monday, Jun 10th

1:30 PM – 3:00 PM ET

From liminality to liberation: FACTS as a case study for addressing VUSs and prioritizing equity in genomic medicine

Location: Hub 2

Speaker: Jennifer K. Wagner, JD PhD (she/her/hers) – Pennsylvania State University

Equity and justice in genetics

Monday, Jun 10th

1:30 PM – 3:00 PM ET

Proper Parents: Poverty, Disability, Race, and Reproductive Control after the Eugenics Era

Location: Forum A

Corresponding Author: Natalie Lira

Panelist: Jim Tabery, PhD – University of Utah

Panelist: Marie Kaniecki, MPH (she/her/hers) – University of California Los Angeles

Panelist: Jennifer James, PhD, MSW, MSSP – University of California, San Francisco

Equity and justice in geneticsReproductive genetics

Monday, Jun 10th

1:30 PM – 3:00 PM ET

"'Whose Science? Whose Knowledge?’* Equitable Partnerships and Diverse Teams for Just Genomic Research"

Location: Forum B

Corresponding Author: Shawneequa Callier, MA JD – The George Washington University

Panelist: Lori B. Chibnik – Harvard University

Panelist: Elise Li Zheng, PhD – Columbia University

Panelist: Paul Meller, PhD (he/him/his) – Wellcome Trust

Biobanking and genomic databasesCommunity engagementEquity and justice in genetics

Monday, Jun 10th

1:30 PM – 3:00 PM ET

Minoritized Community Recommendations for Ethical Conduct of Social Epigenomic Research

Location: Hub 1

Speaker: Courtney Berrios, MSc, ScM, CGC (she/her/hers) – Children's Mercy Kansas City

Community engagementEquity and justice in genetics

Monday, Jun 10th

1:30 PM – 3:00 PM ET

Rethinking the Rule Against Testing Children for Adult-Onset Conditions: A New Zealand Case Study

Location: Hub 2

Speaker: Josephine Johnston, LLB, MBHL (she/her/hers) – University of Otago and The Hastings Center

Clinical genetic testingEquity and justice in genetics

Monday, Jun 10th

3:30 PM – 5:00 PM ET

Incorporating Equity Considerations in Health Technology Assessment and Funding of Genome Medicine Technologies in Ontario, Canada

Location: Hub 1

Speaker: Wendy J. Ungar, MSc, PhD (she/her/hers) – The Hospital for Sick Children Research Institute (Canada)

Equity and justice in genetics

Monday, Jun 10th

3:30 PM – 5:00 PM ET

Prenatal Genetic counseling practice and training in the aftermath of the Dobbs v. Jackson Supreme Court Decision

Location: Hub 1

Speaker: Galen Joseph, PhD (she/her/hers) – University of California, San Francisco

Equity and justice in geneticsGenetic counselingReproductive genetics

Monday, Jun 10th

3:30 PM – 5:00 PM ET

Differences between private, government, and consortium data stewards and their impact on genetic research with diverse ancestral populations

Location: Hub 2

Speaker: Kayte Spector-Bagdady, JD, MBe (she/her/hers) – University of Michigan

Biobanking and genomic databasesEquity and justice in genetics

Monday, Jun 10th

3:30 PM – 5:00 PM ET

Ableism, Intersectionality and Justice in Genomic Science

Location: Forum A

Corresponding Author: Maya Sabatello, LLB, PhD (she/her/hers) – Columbia University

Panelist: Chris Donohue – National Human Genome Research Institute

Panelist: Tracy King, MD, MPH (she/her/hers) – Eunice Kennedy Shriver National Institute of Child Health and Human Development

Panelist: Alejandra N. Aguirre

Equity and justice in genetics

Monday, Jun 10th

3:30 PM – 5:00 PM ET

Federally Qualified Health Center All of Us Participants Conflating Research and Care

Location: Hub 2

Speaker: Danielle Pacia, MBE – The Hastings Center

Biobanking and genomic databasesEquity and justice in geneticsReturn of results and incidental findings

Tuesday, Jun 11th

10:30 AM – 12:00 PM ET

Addressing inequity in genomics: Normative and pragmatic considerations in using distributional cost-effectiveness analysis to guide decision making

Location: Forum A

Corresponding Author: Hadley Smith, PhD, MPSA – Harvard University

Panelist: Jeroen Jansen, PhD (he/him/his) – University of California, San Francisco

Panelist: Shawn Winsor, MHSc, PhDc (he/him/his) – University of Toronto (Canada)

Panelist: Shawneequa Callier, MA JD – The George Washington University

Equity and justice in geneticsMethodology and study design

Tuesday, Jun 11th

1:30 PM – 3:00 PM ET

Nothing About Us Without Us: Sharing Relevant Results with Communities that Provide Genomic Data

Location: Hub 2

Speaker: Sarah LeBaron von Baeyer, PhD (she/her/hers) – Variant Bio

Community engagementEquity and justice in geneticsReturn of results and incidental findings

Tuesday, Jun 11th

1:30 PM – 3:00 PM ET

Implementation of genome-informed risk assessments for diverse and underrepresented populations: Lessons learned from the eMERGE IV study

Location: Forum B

Corresponding Author: Katherine Bonini, MS, MA, CGC (she/her/hers) – Mount Sinai Hospital

Panelist: Stephanie Malia Fullerton, DPhil (she/her/hers) – University of Washington

Panelist: Laura Rasmussen-Torvik, PhD, MPH (she/her/hers) – Northwestern University

Panelist: Harris T. Bland, MPH, MBA (he/him/his) – Vanderbilt University

Panelist: Margaret Harr, CGC, CAPM (she/her/hers) – Children’s Hospital of Philadelphia

Equity and justice in genetics

Tuesday, Jun 11th

1:30 PM – 3:00 PM ET

Justice is not being served: A critique of public engagement about human genome editing

Location: Hub 2

Speaker: Ryan Tonkens – Lakehead University (Canada)

Community engagementEquity and justice in genetics

Tuesday, Jun 11th

1:30 PM – 3:00 PM ET

Polygenic Prediction: How Scientists Navigate Uncertainty in an Emergent Field

Location: Hub 1

Speaker: Zachary Griffen, PhD (he/him/his) – New York University

Education and public understanding of genetic scienceEquity and justice in genetics

Tuesday, Jun 11th

3:30 PM – 5:00 PM ET

Improving care for marginalized populations at risk for hereditary cancer syndromes: Innovations that expanded genomic services’ reach in the CHARM study.

Location: Forum A

Corresponding Author: Benjamin Wilfond, MD (he/him/his) – Seattle Childrens Research Institute

Panelist: Stephanie Kraft, JD (she/her/hers) – Seattle Childrens Research Institute

Panelist: Sarah Knerr, PhD, MPH – University of Washington

Panelist: Galen Joseph, PhD (she/her/hers) – University of California, San Francisco

Clinical genetic testingEquity and justice in genetics

Wednesday, Jun 12th

10:30 AM – 12:00 PM ET

Experiential ethics training for genomic researchers

Location: Hub 2

Corresponding Author: Quinn Waeiss, PhD (they/them/theirs) – Stanford University

Panelist: Ariadne Nichol, BA – Stanford Center for Biomedical Ethics

Panelist: David Magnus – Stanford Center for Biomedical Ethics

Panelist: Katie Shilton, PhD – University of Maryland

Panelist: Michael Bernstein – Stanford University

AI and machine learningEquity and justice in geneticsMethodology and study design

Wednesday, Jun 12th

10:30 AM – 12:00 PM ET

Identifying and Dismantling Systemic Ableism in Prenatal Screening

Location: Hub 1

Speaker: Stephanie Meredith, MA, DrPH (she/her/hers) – University of Kentucky

Clinical genetic testingEquity and justice in genetics

Wednesday, Jun 12th

10:30 AM – 12:00 PM ET

Editing Future Generations, Centering Translational Justice: How Do Potential End Users Imagine the Benefits and Tradeoffs of Prenatal Genetic Therapies?

Location: Forum A

Corresponding Author: Julia Brown, PhD (she/her/hers) – University of California, San Francisco

Panelist: Marsha Michie, PhD (she/her/hers) – Case Western Reserve University School of Medicine

Panelist: Megan Allyse – Mayo Clinic

Panelist: Shameka Poetry Thomas, PhD (she/her/hers) – The Ohio State University-College of Medicine

Equity and justice in geneticsReproductive genetics

Wednesday, Jun 12th

1:30 PM – 3:00 PM ET

Genomics Research and Childhood Obesity through the Lenses of Equity: Reassessing Responsibilities and Costs between Families and Society

Location: Hub 1

Speaker: Ilaria Galasso, PhD – Technical University of Munich (Germany)

Equity and justice in geneticsPerinatal and public health genetic screening

Wednesday, Jun 12th

1:30 PM – 3:00 PM ET

ELSI of implementing clinical genetic testing in kidney disease and transplantation care

Location: Hub 1

Speaker: Tamar Schiff, MD (she/her/hers) – NYU Grossman School of Medicine

Biobanking and genomic databasesClinical genetic testingEquity and justice in genetics

Wednesday, Jun 12th

1:30 PM – 3:00 PM ET

Increasing Diversity in Genetic Databases: Lessons Learned from 20 Years of Slow Progress

Location: Hub 1

Presenter: Robert I. Field, JD, MPH, PhD – Drexel University

Biobanking and genomic databasesEquity and justice in genetics

Wednesday, Jun 12th

1:30 PM – 3:00 PM ET

Contemporary bioethics and policy changes for children with profound disabilities: Cardiac Surgery in Children with Trisomy 18

Location: Forum B

Corresponding Author: Benjamin Wilfond, MD (he/him/his) – Seattle Childrens Research Institute

Panelist: Jennifer Castillo, JD – Trisomy Collaborative

Panelist: John Carey, MD, MPH, FAAP, FACMGG (he/him/his) – University of Utah

Panelist: Mark Mecurio – Yale University

Panelist: Katherine Kosiv, MD (she/her/hers) – Yale University

Equity and justice in genetics

Wednesday, Jun 12th

3:30 PM – 5:00 PM ET

The ELSI of Engagement: Benefits and Challenges to Achieving a Just Genomics

Location: Forum B

Corresponding Author: Meghan Halley, PhD, MPH – Stanford Center for Biomedical Ethics

Panelist: Ryan Fischer – Foundation for Angelman Syndrome Therapeutics

Panelist: Daphne Martschenko, PhD – Stanford University

Panelist: Jennifer L. Young, PhD, MA, MS (she/her/hers) – Northwestern University

Panelist: AudreyStephannie Maghiro, AB (she/her/hers) – WUSM/Undiagnosed Diseases Network at Harvard Medical School

Community engagementEquity and justice in genetics

Wednesday, Jun 12th

3:30 PM – 5:00 PM ET

Assumptions of value: Exploring normative aspects of newborn genomic sequencing in decision analytic models

Location: Hub 2

Speaker: Madison R. Hickingbotham, MS – Harvard University

Equity and justice in geneticsMethodology and study designPerinatal and public health genetic screening

Wednesday, Jun 12th

3:30 PM – 5:00 PM ET

Re-envisioning Translational Equity in Pediatric Gene Therapy Research

Location: Hub 2

Speaker: Aaron Goldenberg, PhD MPH (he/him/his) – Case Western Reserve University School of Medecine

Equity and justice in genetics

Wednesday, Jun 12th

3:30 PM – 5:00 PM ET

The Legal Weaponization of Racialized DNA

Location: Hub 2

Speaker: Jonathan Kahn, JD, PhD (he/him/his) – Northeastern University

Equity and justice in geneticsLaw, regulation, and governance

Wednesday, Jun 12th

3:30 PM – 5:00 PM ET

Racial Politics and Health Equity in Genome-Editing Therapeutics

Location: Hub 2

Co-Author: Santiago J. Molina, PhD (he/they) – Northwestern University

Speaker: Melissa Creary, PhD, MPH

Equity and justice in genetics

Gender studies

Wednesday, Jun 12th

3:30 PM – 5:00 PM ET

Reporting practices for sexual and gender minority demographic information in NIH-supported genomic studies

Location: Hub 1

Speaker: Zo Bly, BA (they/them/theirs) – National Human Genome Research Institute, National Institute of Health

Methodology and study design

Wednesday, Jun 12th

3:30 PM – 5:00 PM ET

Governing Research on Reproductive Genomic Interventions: Priorities of Potential Research Participants from Sex and/or Gender Minorities

Location: Hub 1

Speaker: Harlie Dion Custer (she/her/hers) – Case Western Reserve University

Reproductive genetics

Gene therapies and gene editing

Tuesday, Jun 11th

1:30 PM – 3:00 PM ET

Justice is not being served: A critique of public engagement about human genome editing

Location: Hub 2

Speaker: Ryan Tonkens – Lakehead University (Canada)

Community engagementEquity and justice in genetics

Tuesday, Jun 11th

3:30 PM – 5:00 PM ET

The Ethics of “Traceback Testing”: Perspectives of First-Degree Relatives of Deceased Individuals on Privacy, Consent and Benefit.

Location: Hub 1

Speaker: Mikaella I. Caruncho, MSW, MPH (she/her/hers) – Columbia University

Clinical genetic testing

Wednesday, Jun 12th

10:30 AM – 12:00 PM ET

Editing Future Generations, Centering Translational Justice: How Do Potential End Users Imagine the Benefits and Tradeoffs of Prenatal Genetic Therapies?

Location: Forum A

Corresponding Author: Julia Brown, PhD (she/her/hers) – University of California, San Francisco

Panelist: Marsha Michie, PhD (she/her/hers) – Case Western Reserve University School of Medicine

Panelist: Megan Allyse – Mayo Clinic

Panelist: Shameka Poetry Thomas, PhD (she/her/hers) – The Ohio State University-College of Medicine

Equity and justice in geneticsReproductive genetics

Wednesday, Jun 12th

3:30 PM – 5:00 PM ET

Assessing the impacts of the major human genome editing (HGE) reports on the governance landscape

Location: Hub 1

Speaker: Gail E. Henderson, PhD (she/her/hers) – University of North Carolina - Chapel Hill

Law, regulation, and governance

Wednesday, Jun 12th

3:30 PM – 5:00 PM ET

Key stakeholders’ moral attitudes on somatic gene editing for inherited cardiomyopathy: a qualitative interview study

Location: Hub 1

Speaker: Jannieke Simons, MA (she/her/hers) – University Medical Center Utrecht (Netherlands)

Wednesday, Jun 12th

3:30 PM – 5:00 PM ET

Re-envisioning Translational Equity in Pediatric Gene Therapy Research

Location: Hub 2

Speaker: Aaron Goldenberg, PhD MPH (he/him/his) – Case Western Reserve University School of Medecine

Equity and justice in genetics

Wednesday, Jun 12th

3:30 PM – 5:00 PM ET

Governing Research on Reproductive Genomic Interventions: Priorities of Potential Research Participants from Sex and/or Gender Minorities

Location: Hub 1

Speaker: Harlie Dion Custer (she/her/hers) – Case Western Reserve University

Reproductive genetics

Wednesday, Jun 12th

3:30 PM – 5:00 PM ET

Racial Politics and Health Equity in Genome-Editing Therapeutics

Location: Hub 2

Co-Author: Santiago J. Molina, PhD (he/they) – Northwestern University

Speaker: Melissa Creary, PhD, MPH

Equity and justice in genetics

Genetic counseling

Monday, Jun 10th

3:30 PM – 5:00 PM ET

Prenatal Genetic counseling practice and training in the aftermath of the Dobbs v. Jackson Supreme Court Decision

Location: Hub 1

Speaker: Galen Joseph, PhD (she/her/hers) – University of California, San Francisco

Equity and justice in geneticsGenetic counselingReproductive genetics

Tuesday, Jun 11th

10:30 AM – 12:00 PM ET

Digital solutions to deliver genomic medicine: Taking a closer look at what’s under the hood

Location: Hub 2

Corresponding Author: Catharine Wang, PhD, MSc (she/her/hers) – Boston University

Panelist: Deborah Cragun, PhD, MS – University of South Florida

Panelist: Angela Bradbury – University of Pennsylvania

Panelist: Anita Kinney, PhD – Rutgers University

Panelist: Wendy Kohlmann – University of Utah

Genetic counselingMethodology and study designReturn of results and incidental findings

Tuesday, Jun 11th

1:30 PM – 3:00 PM ET

Reimagining reproductive autonomy in light of expanded genomic testing

Location: Hub 2

Speaker: Ainsley J. Newson, PhD (she/her/hers) – The University of Sydney (Australia)

Community engagementGenetic counselingPerinatal and public health genetic screening

Tuesday, Jun 11th

3:30 PM – 5:00 PM ET

Genetic Diagnosis, Bodies, and Imagined Family: Assemblage Perspectives On Reproductive And Family Planning With an Incompletely Penetrant and Variably Expressive Condition

Location: Hub 2

Speaker: Hannah R. Davidson, ScM, CGC (she/her/hers) – Johns Hopkins University

Genetic counseling

Tuesday, Jun 11th

3:30 PM – 5:00 PM ET

The Impact of Patient Race and Polygenic Risk Scores on Cancer Genetic Counselors’ Risk Assessment and Management in Breast Cancer Clinical Vignettes

Location: Hub 2

Speaker: Yifei Sylvia Lin, ScM, CGC – NIH/Johns Hopkins Genetic Counseling Graduate Program

Genetic counseling

Tuesday, Jun 11th

3:30 PM – 5:00 PM ET

“Doing ethics” on the job: Genetic counselors navigating the ethics of work in different settings

Location: Hub 2

Speaker: Susan Markens, PhD (she/her/hers) – City University of New York

Genetic counseling

Wednesday, Jun 12th

1:30 PM – 3:00 PM ET

Weighing the Benefits, Harms, and Limitations of Genetic Testing in the Workplace

Location: Hub 2

Corresponding Author: Scott Roberts, PhD (he/him/his) – University of Michigan

Panelist: Drew Blasco, PhD (she/her/hers) – University of Nevada, Las Vegas

Panelist: Elizabeth J. Charnysh, MS, CGC (she/her/hers) – The Jackson Laboratory for Genomic Medicine

Panelist: Anya Prince – University of Iowa

Moderator: Wendy Uhlmann – University of Michigan

Genetic counseling

Genetic testing for non-medical purposes

Monday, Jun 10th

10:30 AM – 12:00 PM ET

Identifying and Combating the Threat and Enhancing the Promise of Social and Behavioral Genomics

Location: Forum B

Corresponding Author: Anya Prince – University of Iowa

Speaker: Jean Cadigan, PhD

Panelist: Lucas J. Matthews, PHD (he/him/his) – Columbia University

Panelist: Kriste Kuczynski (she/her/hers) – University of North Carolina - Chapel Hill

Panelist: Daphne Martschenko, PhD – Stanford University

Biobanking and genomic databases

Monday, Jun 10th

3:30 PM – 5:00 PM ET

Behind the screens: A case study of misconceptions reflected in social media on the role of health-related consumer genomics services in IGG

Location: Hub 2

Speaker: Nathan Reed – Northwestern University

Biobanking and genomic databasesLaw, regulation, and governance

Tuesday, Jun 11th

1:30 PM – 3:00 PM ET

Lessons on Working with Community Advisory Boards to Address Controversial Genomics Research

Location: Hub 2

Speaker: Sara Watson, MA – Mayo Clinic

Community engagement

Wednesday, Jun 12th

1:30 PM – 3:00 PM ET

Weighing the Benefits, Harms, and Limitations of Genetic Testing in the Workplace

Location: Hub 2

Corresponding Author: Scott Roberts, PhD (he/him/his) – University of Michigan

Panelist: Drew Blasco, PhD (she/her/hers) – University of Nevada, Las Vegas

Panelist: Elizabeth J. Charnysh, MS, CGC (she/her/hers) – The Jackson Laboratory for Genomic Medicine

Panelist: Anya Prince – University of Iowa

Moderator: Wendy Uhlmann – University of Michigan

Genetic counseling

Wednesday, Jun 12th

1:30 PM – 3:00 PM ET

Novel Nonmedical Uses of Genetic Information and Future Concerns

Location: Forum A

Corresponding Author: Christi Guerrini, JD, MPH (she/her/hers) – Baylor College of Medicine

Moderator: Stephanie Malia Fullerton, DPhil (she/her/hers) – University of Washington

Panelist: Sara Huston, MS (she/her/hers) – Lurie Children's

Panelist: Jennifer K. Wagner, JD PhD (she/her/hers) – Pennsylvania State University

Panelist: Jill O. Robinson, MA – Baylor College of Medicine

Biobanking and genomic databasesLaw, regulation, and governance

Global Health

Monday, Jun 10th

10:30 AM – 12:00 PM ET

A Framework for Equity in Genomic Medicine and Research

Location: Hub 1

Speaker: Trupti Patel, PhD (she/her/hers) – Genomics England (United Kingdom)

Equity and justice in geneticsIndigenous communities collaboration

Tuesday, Jun 11th

3:30 PM – 5:00 PM ET

Global Perspectives on Implementing Clinical Genomic Sequencing Equitably, Effectively and Efficiently

Location: Forum B

Corresponding Author: Deborah A. Marshall, PhD (she/her/hers) – The University of Calgary (Canada)

Panelist: Kathryn Phillips, PhD (she/her/hers) – University of California, San Francisco

Panelist: Kurt D. Christensen, PhD (he/him/his) – Harvard University

Panelist: Wendy J. Ungar, MSc, PhD (she/her/hers) – The Hospital for Sick Children Research Institute (Canada)

Panelist: James Buchanan, MA, DPhil (he/him/his) – Queen Mary University of London (United Kingdom)

Clinical genetic testing

Humanities and the Arts

Monday, Jun 10th

10:30 AM – 12:00 PM ET

Genomics Through the Eyes of Others

Location: Forum A

Corresponding Author: Ellen Wright Clayton, JD, MD (she/her/hers) – Vanderbilt University

Panelist: Ayden Eilmus – Vanderbilt University

Panelist: Zhijun Yin, PhD – Vanderbilt University Medical Center

Panelist: Jay Clayton, PhD (he/him/his) – Vanderbilt University

Tuesday, Jun 11th

3:30 PM – 5:00 PM ET

Genetic Diagnosis, Bodies, and Imagined Family: Assemblage Perspectives On Reproductive And Family Planning With an Incompletely Penetrant and Variably Expressive Condition

Location: Hub 2

Speaker: Hannah R. Davidson, ScM, CGC (she/her/hers) – Johns Hopkins University

Genetic counseling

Identity

Monday, Jun 10th

10:30 AM – 12:00 PM ET

Genomics Through the Eyes of Others

Location: Forum A

Corresponding Author: Ellen Wright Clayton, JD, MD (she/her/hers) – Vanderbilt University

Panelist: Ayden Eilmus – Vanderbilt University

Panelist: Zhijun Yin, PhD – Vanderbilt University Medical Center

Panelist: Jay Clayton, PhD (he/him/his) – Vanderbilt University

Monday, Jun 10th

3:30 PM – 5:00 PM ET

Ableism, Intersectionality and Justice in Genomic Science

Location: Forum A

Corresponding Author: Maya Sabatello, LLB, PhD (she/her/hers) – Columbia University

Panelist: Chris Donohue – National Human Genome Research Institute

Panelist: Tracy King, MD, MPH (she/her/hers) – Eunice Kennedy Shriver National Institute of Child Health and Human Development

Panelist: Alejandra N. Aguirre

Equity and justice in genetics

Monday, Jun 10th

3:30 PM – 5:00 PM ET

Biological Relatedness: The Perspectives of Potential Beneficiaries on In Vitro Gametogenesis

Location: Hub 1

Speaker: Anne Le Goff – Independent Researcher

Reproductive genetics

Tuesday, Jun 11th

3:30 PM – 5:00 PM ET

Genetic Diagnosis, Bodies, and Imagined Family: Assemblage Perspectives On Reproductive And Family Planning With an Incompletely Penetrant and Variably Expressive Condition

Location: Hub 2

Speaker: Hannah R. Davidson, ScM, CGC (she/her/hers) – Johns Hopkins University

Genetic counseling

Indigenous communities collaboration

Monday, Jun 10th

8:50 AM – 10:00 AM ET

Plenary: Indigenous Data Sovereignty: Finding Pathways for Equitable Benefit Sharing from Genomic Science

Location: Forum A

Plenary Speaker: Maui Hudson – University of Waikato, Te Pua Wananga ki te Ao (New Zealand)

Indigenous communities collaboration

Monday, Jun 10th

10:30 AM – 12:00 PM ET

A Framework for Equity in Genomic Medicine and Research

Location: Hub 1

Speaker: Trupti Patel, PhD (she/her/hers) – Genomics England (United Kingdom)

Equity and justice in geneticsIndigenous communities collaboration

Monday, Jun 10th

10:30 AM – 12:00 PM ET

Indigenous peoples and the benefits of genomic science: Need for a contexual approach in Africa

Location: Hub 1

Speaker: Faith Kabata – University of KwaZulu-Natal (South Africa)

Equity and justice in geneticsIndigenous communities collaborationLaw, regulation, and governance

Monday, Jun 10th

10:30 AM – 12:00 PM ET

Beneficial engagement with Indigenous Peoples: A survey of Tribal research governance in the United States

Location: Hub 1

Speaker: Ibrahim Garba, SJD (he/him/his) – University of Arizona

Community engagementIndigenous communities collaborationLaw, regulation, and governance

Monday, Jun 10th

1:30 PM – 3:00 PM ET

Learning Together about Genetics: Insights from a Community-University Partnership

Location: Hub 1

Speaker: Susan Brown Trinidad, MA, PhD (she/her/hers) – University of Washington

Community engagementIndigenous communities collaboration

Monday, Jun 10th

3:30 PM – 5:00 PM ET

Indigenous principlism in ELSI: Relational solidarity, data sovereignty and social justice

Location: Forum B

Corresponding Author: Vanessa Hiratsuka, PhD MPH (she/her/hers) – Southcentral Foundation

Panelist: Julie Beans – Southcentral Foundation

Panelist: Christie Byars – Chickasaw Nation

Panelist: Joseph Yracheta – Native BioData Consortium

Panelist: Jessica Blanchard, MA, PhD (she/her/hers) – University of Oklahoma

Community engagementIndigenous communities collaboration

Industry, commercialization, and direct-to-consumer genetics

Monday, Jun 10th

10:30 AM – 12:00 PM ET

Qualitative Analysis of Values-Based Design Group Exercises with Developers of Machine Learning for Precision Medicine

Location: Hub 2

Speaker: Ariadne Nichol, BA – Stanford Center for Biomedical Ethics

AI and machine learning

Tuesday, Jun 11th

3:30 PM – 5:00 PM ET

“Doing ethics” on the job: Genetic counselors navigating the ethics of work in different settings

Location: Hub 2

Speaker: Susan Markens, PhD (she/her/hers) – City University of New York

Genetic counseling

Wednesday, Jun 12th

1:30 PM – 3:00 PM ET

Weighing the Benefits, Harms, and Limitations of Genetic Testing in the Workplace

Location: Hub 2

Corresponding Author: Scott Roberts, PhD (he/him/his) – University of Michigan

Panelist: Drew Blasco, PhD (she/her/hers) – University of Nevada, Las Vegas

Panelist: Elizabeth J. Charnysh, MS, CGC (she/her/hers) – The Jackson Laboratory for Genomic Medicine

Panelist: Anya Prince – University of Iowa

Moderator: Wendy Uhlmann – University of Michigan

Genetic counseling

Law, regulation, and governance

Monday, Jun 10th

10:30 AM – 12:00 PM ET

Indigenous peoples and the benefits of genomic science: Need for a contexual approach in Africa

Location: Hub 1

Speaker: Faith Kabata – University of KwaZulu-Natal (South Africa)

Equity and justice in geneticsIndigenous communities collaborationLaw, regulation, and governance

Monday, Jun 10th

10:30 AM – 12:00 PM ET

Beneficial engagement with Indigenous Peoples: A survey of Tribal research governance in the United States

Location: Hub 1

Speaker: Ibrahim Garba, SJD (he/him/his) – University of Arizona

Community engagementIndigenous communities collaborationLaw, regulation, and governance

Monday, Jun 10th

1:30 PM – 3:00 PM ET

ELSI Considerations of Financial Assistance Programs at the Interface of the Interface of Payer Coverage for Genetic Testing

Location: Hub 2

Speaker: Emily Hammad Mrig, MA, PhD (she/her/hers) – University of California, San Francisco

Equity and justice in geneticsLaw, regulation, and governance

Monday, Jun 10th

3:30 PM – 5:00 PM ET

Attitudes On Law Enforcement Use Of Clinical Genetic Data

Location: Hub 2

Speaker: Sarah Duensing, JD (she/her/hers) – University of Utah

Biobanking and genomic databasesLaw, regulation, and governance

Monday, Jun 10th

3:30 PM – 5:00 PM ET

Analyzing Gamete Donation Screening Guidelines and Their Impact on Disability

Location: Hub 1

Speaker: Hannah V. Carpenter, LLB, MA (she/her/hers) – The University of Texas Medical Branch

Law, regulation, and governanceReproductive genetics

Monday, Jun 10th

3:30 PM – 5:00 PM ET

Behind the screens: A case study of misconceptions reflected in social media on the role of health-related consumer genomics services in IGG

Location: Hub 2

Speaker: Nathan Reed – Northwestern University

Biobanking and genomic databasesLaw, regulation, and governance

Tuesday, Jun 11th

1:30 PM – 3:00 PM ET

Newborn Screening and Early Intervention

Location: Forum A

Corresponding Author: Kyle B. Brothers, MD, PhD (he/him/his) – Norton Children's Research Institute

Panelist: Sara Ackerman, PhD MPH (she/her/hers) – University of California, San Francisco

Panelist: Amy A. Lemke, PhD MS (she/her/hers) – Norton Children's Research Institute

Panelist: Jeff Brosco, MD PhD – Health Resources and Services Administration

Panelist: Don Bailey, PhD (he/him/his) – RTI International

Clinical genetic testingLaw, regulation, and governance

Tuesday, Jun 11th

3:30 PM – 5:00 PM ET

Legal Protections Against Genetic Discrimination: Awareness Among Adults and Adolescents with Psychiatric Conditions and Caregivers

Location: Hub 1

Speaker: Ana Lucia Battaglino, MA (she/her/hers) – Harvard University

Clinical genetic testingLaw, regulation, and governance

Wednesday, Jun 12th

1:30 PM – 3:00 PM ET

Novel Nonmedical Uses of Genetic Information and Future Concerns

Location: Forum A

Corresponding Author: Christi Guerrini, JD, MPH (she/her/hers) – Baylor College of Medicine

Moderator: Stephanie Malia Fullerton, DPhil (she/her/hers) – University of Washington

Panelist: Sara Huston, MS (she/her/hers) – Lurie Children's

Panelist: Jennifer K. Wagner, JD PhD (she/her/hers) – Pennsylvania State University

Panelist: Jill O. Robinson, MA – Baylor College of Medicine

Biobanking and genomic databasesLaw, regulation, and governance

Wednesday, Jun 12th

1:30 PM – 3:00 PM ET

The Failed Protection of Proposed Changes to HIPAA

Location: Hub 1

Speaker: Ellen Wright Clayton, JD, MD (she/her/hers) – Vanderbilt University

Law, regulation, and governance

Wednesday, Jun 12th

3:30 PM – 5:00 PM ET

Assessing the impacts of the major human genome editing (HGE) reports on the governance landscape

Location: Hub 1

Speaker: Gail E. Henderson, PhD (she/her/hers) – University of North Carolina - Chapel Hill

Law, regulation, and governance

Wednesday, Jun 12th

3:30 PM – 5:00 PM ET

The Legal Weaponization of Racialized DNA

Location: Hub 2

Speaker: Jonathan Kahn, JD, PhD (he/him/his) – Northeastern University

Equity and justice in geneticsLaw, regulation, and governance

Methodology and study design

Monday, Jun 10th

1:30 PM – 3:00 PM ET

Attitudes, Values, Preferences, Oh My! What Stated Preference Methods Can Bring to ELSI Research

Location: Hub 2

Speaker: Taylor Montgomery, MPH (she/her/hers) – Harvard University

Methodology and study design

Tuesday, Jun 11th

10:30 AM – 12:00 PM ET

Addressing inequity in genomics: Normative and pragmatic considerations in using distributional cost-effectiveness analysis to guide decision making

Location: Forum A

Corresponding Author: Hadley Smith, PhD, MPSA – Harvard University

Panelist: Jeroen Jansen, PhD (he/him/his) – University of California, San Francisco

Panelist: Shawn Winsor, MHSc, PhDc (he/him/his) – University of Toronto (Canada)

Panelist: Shawneequa Callier, MA JD – The George Washington University

Equity and justice in geneticsMethodology and study design

Tuesday, Jun 11th

10:30 AM – 12:00 PM ET

Digital solutions to deliver genomic medicine: Taking a closer look at what’s under the hood

Location: Hub 2

Corresponding Author: Catharine Wang, PhD, MSc (she/her/hers) – Boston University

Panelist: Deborah Cragun, PhD, MS – University of South Florida

Panelist: Angela Bradbury – University of Pennsylvania

Panelist: Anita Kinney, PhD – Rutgers University

Panelist: Wendy Kohlmann – University of Utah

Genetic counselingMethodology and study designReturn of results and incidental findings

Wednesday, Jun 12th

10:30 AM – 12:00 PM ET

Experiential ethics training for genomic researchers

Location: Hub 2

Corresponding Author: Quinn Waeiss, PhD (they/them/theirs) – Stanford University

Panelist: Ariadne Nichol, BA – Stanford Center for Biomedical Ethics

Panelist: David Magnus – Stanford Center for Biomedical Ethics

Panelist: Katie Shilton, PhD – University of Maryland

Panelist: Michael Bernstein – Stanford University

AI and machine learningEquity and justice in geneticsMethodology and study design

Wednesday, Jun 12th

3:30 PM – 5:00 PM ET

Assumptions of value: Exploring normative aspects of newborn genomic sequencing in decision analytic models

Location: Hub 2

Speaker: Madison R. Hickingbotham, MS – Harvard University

Equity and justice in geneticsMethodology and study designPerinatal and public health genetic screening

Wednesday, Jun 12th

3:30 PM – 5:00 PM ET

Reporting practices for sexual and gender minority demographic information in NIH-supported genomic studies

Location: Hub 1

Speaker: Zo Bly, BA (they/them/theirs) – National Human Genome Research Institute, National Institute of Health

Methodology and study design

Patient-provider communication

Monday, Jun 10th

1:30 PM – 3:00 PM ET

Studying Perspectives of Parents and Treating Physicians about Rapid Genomic Sequencing in the Context of Neonatal and Pediatric Critical Care in a Canadian Setting

Location: Hub 1

Speaker: Guylaine D'Amours, MD, MSc (she/her/hers) – CHU Sainte-Justine (Canada)

Clinical genetic testing

Tuesday, Jun 11th

10:30 AM – 12:00 PM ET

PRAGMatIQ study - Rapid whole-genome sequencing in children in acute care in a universal health care system: Physicians underestimate parental expectations and concerns

Location: Hub 1

Speaker: Claudia Azuelos, MD (she/her/hers) – Université de Montréal and CHU Ste-Justine (Canada)

Clinical genetic testingReturn of results and incidental findings

Tuesday, Jun 11th

1:30 PM – 3:00 PM ET

Anticipating social and interpersonal influence of polygenic scores in future clinical settings

Location: Hub 1

Speaker: Susan Persky, PhD (she/her/hers) – National Human Genome Research Institute, National Institutes of Health

Tuesday, Jun 11th

3:30 PM – 5:00 PM ET

“Doing ethics” on the job: Genetic counselors navigating the ethics of work in different settings

Location: Hub 2

Speaker: Susan Markens, PhD (she/her/hers) – City University of New York

Genetic counseling

Wednesday, Jun 12th

10:30 AM – 12:00 PM ET

“I have data, I have science behind my treatment plan”: A qualitative study of clinician and patient views and experiences with pharmacogenomic testing for depression

Location: Hub 1

Speaker: Katherine Hendy, PhD (she/her/hers) – University of Michigan

Clinical genetic testing

Wednesday, Jun 12th

1:30 PM – 3:00 PM ET

Contemporary bioethics and policy changes for children with profound disabilities: Cardiac Surgery in Children with Trisomy 18

Location: Forum B

Corresponding Author: Benjamin Wilfond, MD (he/him/his) – Seattle Childrens Research Institute

Panelist: Jennifer Castillo, JD – Trisomy Collaborative

Panelist: John Carey, MD, MPH, FAAP, FACMGG (he/him/his) – University of Utah

Panelist: Mark Mecurio – Yale University

Panelist: Katherine Kosiv, MD (she/her/hers) – Yale University

Equity and justice in genetics

Wednesday, Jun 12th

3:30 PM – 5:00 PM ET

From Person-Centered to Family-Centered: Navigating Practical and Ethical Issues in Health System-Led Contact for Cascade Screening

Location: Forum A

Panelist: Leila Jamal, ScM, PhD, LGC (she/her/hers) – National Cancer Institute and NIH Bioethics Department

Panelist: Katherine Bonini, MS, MA, CGC (she/her/hers) – Mount Sinai Hospital

Panelist: Nora B. Henrikson – Kaiser Permanente Washington

Moderator: Emily Bonkowski, ScM, CGC (she/her/hers) – St. Jude Children's Research Hospital

Clinical genetic testing

Perinatal and public health genetic screening

Tuesday, Jun 11th

10:30 AM – 12:00 PM ET

Prenatal genetic information as preparation: Parents and clinicians reimagining benefits for families and future children

Location: Hub 1

Speaker: Sabina Rubeck, MPH – Case Western Reserve University

Clinical genetic testingPerinatal and public health genetic screeningReproductive genetics

Tuesday, Jun 11th

1:30 PM – 3:00 PM ET

Reimagining reproductive autonomy in light of expanded genomic testing

Location: Hub 2

Speaker: Ainsley J. Newson, PhD (she/her/hers) – The University of Sydney (Australia)

Community engagementGenetic counselingPerinatal and public health genetic screening

Wednesday, Jun 12th

1:30 PM – 3:00 PM ET

Genomics Research and Childhood Obesity through the Lenses of Equity: Reassessing Responsibilities and Costs between Families and Society

Location: Hub 1

Speaker: Ilaria Galasso, PhD – Technical University of Munich (Germany)

Equity and justice in geneticsPerinatal and public health genetic screening

Wednesday, Jun 12th

3:30 PM – 5:00 PM ET

Assumptions of value: Exploring normative aspects of newborn genomic sequencing in decision analytic models

Location: Hub 2

Speaker: Madison R. Hickingbotham, MS – Harvard University

Equity and justice in geneticsMethodology and study designPerinatal and public health genetic screening

Polygenic risk scores

Monday, Jun 10th

10:30 AM – 12:00 PM ET

Identifying and Combating the Threat and Enhancing the Promise of Social and Behavioral Genomics

Location: Forum B

Corresponding Author: Anya Prince – University of Iowa

Speaker: Jean Cadigan, PhD

Panelist: Lucas J. Matthews, PHD (he/him/his) – Columbia University

Panelist: Kriste Kuczynski (she/her/hers) – University of North Carolina - Chapel Hill

Panelist: Daphne Martschenko, PhD – Stanford University

Biobanking and genomic databases

Tuesday, Jun 11th

10:30 AM – 12:00 PM ET

Clinician Perspectives on Polygenic Risk Scores in Child and Adolescent Psychiatry: Current Concerns and Future Utility

Location: Hub 1

Speaker: Page M. Trotter, MPH (she/her/hers) – Baylor College of Medicine

Clinical genetic testingReturn of results and incidental findings

Tuesday, Jun 11th

10:30 AM – 12:00 PM ET

Patient Perspectives on the use of Polygenic Risk Scores in Psychiatry

Location: Hub 1

Speaker: Amanda R. Merner, PhD – Harvard University

Return of results and incidental findings

Tuesday, Jun 11th

1:30 PM – 3:00 PM ET

Lessons on Working with Community Advisory Boards to Address Controversial Genomics Research

Location: Hub 2

Speaker: Sara Watson, MA – Mayo Clinic

Community engagement

Tuesday, Jun 11th

1:30 PM – 3:00 PM ET

Anticipating social and interpersonal influence of polygenic scores in future clinical settings

Location: Hub 1

Speaker: Susan Persky, PhD (she/her/hers) – National Human Genome Research Institute, National Institutes of Health

Tuesday, Jun 11th

1:30 PM – 3:00 PM ET

Divergence Between Clinician and Patient Perspectives on Polygenic Embryo Screening

Location: Hub 1

Speaker: Dorit Barlevy, PhD (she/her/hers) – Baylor College of Medicine

Reproductive genetics

Tuesday, Jun 11th

1:30 PM – 3:00 PM ET

Polygenic Embryo Screening: High Approval Despite Substantial Concerns from the U.S. Public

Location: Hub 1

Speaker: Rémy Furrer, PhD – Harvard University

Education and public understanding of genetic scienceReproductive genetics

Tuesday, Jun 11th

1:30 PM – 3:00 PM ET

Implementation of genome-informed risk assessments for diverse and underrepresented populations: Lessons learned from the eMERGE IV study

Location: Forum B

Corresponding Author: Katherine Bonini, MS, MA, CGC (she/her/hers) – Mount Sinai Hospital

Panelist: Stephanie Malia Fullerton, DPhil (she/her/hers) – University of Washington

Panelist: Laura Rasmussen-Torvik, PhD, MPH (she/her/hers) – Northwestern University

Panelist: Harris T. Bland, MPH, MBA (he/him/his) – Vanderbilt University

Panelist: Margaret Harr, CGC, CAPM (she/her/hers) – Children’s Hospital of Philadelphia

Equity and justice in genetics

Tuesday, Jun 11th

1:30 PM – 3:00 PM ET

Polygenic Prediction: How Scientists Navigate Uncertainty in an Emergent Field

Location: Hub 1

Speaker: Zachary Griffen, PhD (he/him/his) – New York University

Education and public understanding of genetic scienceEquity and justice in genetics

Tuesday, Jun 11th

3:30 PM – 5:00 PM ET

Conceptions of Health and Polygenic Embryo Screening

Location: Hub 2

Speaker: Dorit Barlevy, PhD (she/her/hers) – Baylor College of Medicine

Reproductive genetics

Tuesday, Jun 11th

3:30 PM – 5:00 PM ET

The Impact of Patient Race and Polygenic Risk Scores on Cancer Genetic Counselors’ Risk Assessment and Management in Breast Cancer Clinical Vignettes

Location: Hub 2

Speaker: Yifei Sylvia Lin, ScM, CGC – NIH/Johns Hopkins Genetic Counseling Graduate Program

Genetic counseling

Wednesday, Jun 12th

10:30 AM – 12:00 PM ET

Psychiatric Polygenic Risk Scores in Reproductive Decision-Making: Perspectives from Adults with Psychiatric Conditions

Location: Hub 1

Speaker: Ana Lucia Battaglino, MA (she/her/hers) – Harvard University

Clinical genetic testingReproductive genetics

Population genetics

Tuesday, Jun 11th

1:30 PM – 3:00 PM ET

Implementation of genome-informed risk assessments for diverse and underrepresented populations: Lessons learned from the eMERGE IV study

Location: Forum B

Corresponding Author: Katherine Bonini, MS, MA, CGC (she/her/hers) – Mount Sinai Hospital

Panelist: Stephanie Malia Fullerton, DPhil (she/her/hers) – University of Washington

Panelist: Laura Rasmussen-Torvik, PhD, MPH (she/her/hers) – Northwestern University

Panelist: Harris T. Bland, MPH, MBA (he/him/his) – Vanderbilt University

Panelist: Margaret Harr, CGC, CAPM (she/her/hers) – Children’s Hospital of Philadelphia

Equity and justice in genetics

Precision Medicine

Monday, Jun 10th

10:30 AM – 12:00 PM ET

Making Power Explicable in AI Development: Power preposition and Explainable AI (XAI) in Precision Medicine

Location: Hub 2

Speaker: Elise Li Zheng, PhD – Columbia University

AI and machine learningEquity and justice in genetics

Monday, Jun 10th

10:30 AM – 12:00 PM ET

Understanding Physicians' Perceptions: AI-Enabled Pharmacogenomics for Mental Health Disorders

Location: Hub 2

Speaker: Austin M. Stroud, MA (he/him/his) – Mayo Clinic

AI and machine learningClinical genetic testing

Monday, Jun 10th

10:30 AM – 12:00 PM ET

Qualitative Analysis of Values-Based Design Group Exercises with Developers of Machine Learning for Precision Medicine

Location: Hub 2

Speaker: Ariadne Nichol, BA – Stanford Center for Biomedical Ethics

AI and machine learning

Monday, Jun 10th

1:30 PM – 3:00 PM ET

ELSI Considerations of Financial Assistance Programs at the Interface of the Interface of Payer Coverage for Genetic Testing

Location: Hub 2

Speaker: Emily Hammad Mrig, MA, PhD (she/her/hers) – University of California, San Francisco

Equity and justice in geneticsLaw, regulation, and governance

Monday, Jun 10th

1:30 PM – 3:00 PM ET

From liminality to liberation: FACTS as a case study for addressing VUSs and prioritizing equity in genomic medicine

Location: Hub 2

Speaker: Jennifer K. Wagner, JD PhD (she/her/hers) – Pennsylvania State University

Equity and justice in genetics

Monday, Jun 10th

1:30 PM – 3:00 PM ET

Minoritized Community Recommendations for Ethical Conduct of Social Epigenomic Research

Location: Hub 1

Speaker: Courtney Berrios, MSc, ScM, CGC (she/her/hers) – Children's Mercy Kansas City

Community engagementEquity and justice in genetics

Monday, Jun 10th

3:30 PM – 5:00 PM ET

Incorporating Equity Considerations in Health Technology Assessment and Funding of Genome Medicine Technologies in Ontario, Canada

Location: Hub 1

Speaker: Wendy J. Ungar, MSc, PhD (she/her/hers) – The Hospital for Sick Children Research Institute (Canada)

Equity and justice in genetics

Tuesday, Jun 11th

10:30 AM – 12:00 PM ET

Artificial intelligence for precision medicine: How close to ‘personalized’ can we really get?

Location: Forum B

Corresponding Author: Carole Federico, MSc, PhD (she/her/hers) – Stanford University

Panelist: Kristin Kostick-Quenet – Baylor College of Medicine

Panelist: Nicole Martinez-Martin, JD, PhD (she/her/hers) – Stanford University

Panelist: Abdoul Jalil Djiberou Mahamadou, PhD (he/him/his) – Stanford University

AI and machine learning

Tuesday, Jun 11th

3:30 PM – 5:00 PM ET

Impact of Returning Genomic Results Related to Adult-Onset Conditions to Pediatric Patients

Location: Hub 1

Speaker: Adam Buchanan, MS, MPH, CGC (he/him/his) – Geisinger College of Health Sciences

Clinical genetic testingReturn of results and incidental findings

Tuesday, Jun 11th

3:30 PM – 5:00 PM ET

Global Perspectives on Implementing Clinical Genomic Sequencing Equitably, Effectively and Efficiently

Location: Forum B

Corresponding Author: Deborah A. Marshall, PhD (she/her/hers) – The University of Calgary (Canada)

Panelist: Kathryn Phillips, PhD (she/her/hers) – University of California, San Francisco

Panelist: Kurt D. Christensen, PhD (he/him/his) – Harvard University

Panelist: Wendy J. Ungar, MSc, PhD (she/her/hers) – The Hospital for Sick Children Research Institute (Canada)

Panelist: James Buchanan, MA, DPhil (he/him/his) – Queen Mary University of London (United Kingdom)

Clinical genetic testing

Tuesday, Jun 11th

3:30 PM – 5:00 PM ET

Tumor Whole-Genome-Sequencing: ethical guidance on dealing with germline data

Location: Hub 1

Speaker: Noor Giesbertz, MD, PhD – Antoni van Leeuwenhoek Hospital (Netherlands)

Clinical genetic testing

Wednesday, Jun 12th

10:30 AM – 12:00 PM ET

Patient perceptions of duties and responsibilities in variant reclassification and recontact process: A modified cognitive interview study

Location: Hub 1

Speaker: Sukh Makhnoon, PhD, MS – University of Texas Southwestern Medical Center

Clinical genetic testingReturn of results and incidental findings

Wednesday, Jun 12th

10:30 AM – 12:00 PM ET

“I have data, I have science behind my treatment plan”: A qualitative study of clinician and patient views and experiences with pharmacogenomic testing for depression

Location: Hub 1

Speaker: Katherine Hendy, PhD (she/her/hers) – University of Michigan

Clinical genetic testing

Wednesday, Jun 12th

1:30 PM – 3:00 PM ET

Increasing Diversity in Genetic Databases: Lessons Learned from 20 Years of Slow Progress

Location: Hub 1

Presenter: Robert I. Field, JD, MPH, PhD – Drexel University

Biobanking and genomic databasesEquity and justice in genetics

Wednesday, Jun 12th

3:30 PM – 5:00 PM ET

The ELSI of Engagement: Benefits and Challenges to Achieving a Just Genomics

Location: Forum B

Corresponding Author: Meghan Halley, PhD, MPH – Stanford Center for Biomedical Ethics

Panelist: Ryan Fischer – Foundation for Angelman Syndrome Therapeutics

Panelist: Daphne Martschenko, PhD – Stanford University

Panelist: Jennifer L. Young, PhD, MA, MS (she/her/hers) – Northwestern University

Panelist: AudreyStephannie Maghiro, AB (she/her/hers) – WUSM/Undiagnosed Diseases Network at Harvard Medical School

Community engagementEquity and justice in genetics

Wednesday, Jun 12th

3:30 PM – 5:00 PM ET

Key stakeholders’ moral attitudes on somatic gene editing for inherited cardiomyopathy: a qualitative interview study

Location: Hub 1

Speaker: Jannieke Simons, MA (she/her/hers) – University Medical Center Utrecht (Netherlands)

Public Health

Monday, Jun 10th

10:30 AM – 12:00 PM ET

Empowering Indigenous Voices: Assessing the Impact of the SING USA Workshop

Location: Hub 1

Speaker: Leah Nez, Post-Baccalaureate (she/her/hers) – University of Colorado Anschutz Medical Campus

Education and public understanding of genetic scienceEquity and justice in genetics

Monday, Jun 10th

3:30 PM – 5:00 PM ET

Incorporating Equity Considerations in Health Technology Assessment and Funding of Genome Medicine Technologies in Ontario, Canada

Location: Hub 1

Speaker: Wendy J. Ungar, MSc, PhD (she/her/hers) – The Hospital for Sick Children Research Institute (Canada)

Equity and justice in genetics

Tuesday, Jun 11th

10:30 AM – 12:00 PM ET

Addressing inequity in genomics: Normative and pragmatic considerations in using distributional cost-effectiveness analysis to guide decision making

Location: Forum A

Corresponding Author: Hadley Smith, PhD, MPSA – Harvard University

Panelist: Jeroen Jansen, PhD (he/him/his) – University of California, San Francisco

Panelist: Shawn Winsor, MHSc, PhDc (he/him/his) – University of Toronto (Canada)

Panelist: Shawneequa Callier, MA JD – The George Washington University

Equity and justice in geneticsMethodology and study design

Tuesday, Jun 11th

3:30 PM – 5:00 PM ET

Improving care for marginalized populations at risk for hereditary cancer syndromes: Innovations that expanded genomic services’ reach in the CHARM study.

Location: Forum A

Corresponding Author: Benjamin Wilfond, MD (he/him/his) – Seattle Childrens Research Institute

Panelist: Stephanie Kraft, JD (she/her/hers) – Seattle Childrens Research Institute

Panelist: Sarah Knerr, PhD, MPH – University of Washington

Panelist: Galen Joseph, PhD (she/her/hers) – University of California, San Francisco

Clinical genetic testingEquity and justice in genetics

Wednesday, Jun 12th

1:30 PM – 3:00 PM ET

Genomics Research and Childhood Obesity through the Lenses of Equity: Reassessing Responsibilities and Costs between Families and Society

Location: Hub 1

Speaker: Ilaria Galasso, PhD – Technical University of Munich (Germany)

Equity and justice in geneticsPerinatal and public health genetic screening

Wednesday, Jun 12th

3:30 PM – 5:00 PM ET

From Person-Centered to Family-Centered: Navigating Practical and Ethical Issues in Health System-Led Contact for Cascade Screening

Location: Forum A

Panelist: Leila Jamal, ScM, PhD, LGC (she/her/hers) – National Cancer Institute and NIH Bioethics Department

Panelist: Katherine Bonini, MS, MA, CGC (she/her/hers) – Mount Sinai Hospital

Panelist: Nora B. Henrikson – Kaiser Permanente Washington

Moderator: Emily Bonkowski, ScM, CGC (she/her/hers) – St. Jude Children's Research Hospital

Clinical genetic testing

Reproductive genetics

Monday, Jun 10th

1:30 PM – 3:00 PM ET

Proper Parents: Poverty, Disability, Race, and Reproductive Control after the Eugenics Era

Location: Forum A

Corresponding Author: Natalie Lira

Panelist: Jim Tabery, PhD – University of Utah

Panelist: Marie Kaniecki, MPH (she/her/hers) – University of California Los Angeles

Panelist: Jennifer James, PhD, MSW, MSSP – University of California, San Francisco

Equity and justice in geneticsReproductive genetics

Monday, Jun 10th

3:30 PM – 5:00 PM ET

Prenatal Genetic counseling practice and training in the aftermath of the Dobbs v. Jackson Supreme Court Decision

Location: Hub 1

Speaker: Galen Joseph, PhD (she/her/hers) – University of California, San Francisco

Equity and justice in geneticsGenetic counselingReproductive genetics

Monday, Jun 10th

3:30 PM – 5:00 PM ET

Analyzing Gamete Donation Screening Guidelines and Their Impact on Disability

Location: Hub 1

Speaker: Hannah V. Carpenter, LLB, MA (she/her/hers) – The University of Texas Medical Branch

Law, regulation, and governanceReproductive genetics

Monday, Jun 10th

3:30 PM – 5:00 PM ET

Biological Relatedness: The Perspectives of Potential Beneficiaries on In Vitro Gametogenesis

Location: Hub 1

Speaker: Anne Le Goff – Independent Researcher

Reproductive genetics

Tuesday, Jun 11th

10:30 AM – 12:00 PM ET

Prenatal genetic information as preparation: Parents and clinicians reimagining benefits for families and future children

Location: Hub 1

Speaker: Sabina Rubeck, MPH – Case Western Reserve University

Clinical genetic testingPerinatal and public health genetic screeningReproductive genetics

Tuesday, Jun 11th

1:30 PM – 3:00 PM ET

Divergence Between Clinician and Patient Perspectives on Polygenic Embryo Screening

Location: Hub 1

Speaker: Dorit Barlevy, PhD (she/her/hers) – Baylor College of Medicine

Reproductive genetics

Tuesday, Jun 11th

1:30 PM – 3:00 PM ET

Polygenic Embryo Screening: High Approval Despite Substantial Concerns from the U.S. Public

Location: Hub 1

Speaker: Rémy Furrer, PhD – Harvard University

Education and public understanding of genetic scienceReproductive genetics

Tuesday, Jun 11th

3:30 PM – 5:00 PM ET

Conceptions of Health and Polygenic Embryo Screening

Location: Hub 2

Speaker: Dorit Barlevy, PhD (she/her/hers) – Baylor College of Medicine

Reproductive genetics

Wednesday, Jun 12th

10:30 AM – 12:00 PM ET

Editing Future Generations, Centering Translational Justice: How Do Potential End Users Imagine the Benefits and Tradeoffs of Prenatal Genetic Therapies?

Location: Forum A

Corresponding Author: Julia Brown, PhD (she/her/hers) – University of California, San Francisco

Panelist: Marsha Michie, PhD (she/her/hers) – Case Western Reserve University School of Medicine

Panelist: Megan Allyse – Mayo Clinic

Panelist: Shameka Poetry Thomas, PhD (she/her/hers) – The Ohio State University-College of Medicine

Equity and justice in geneticsReproductive genetics

Wednesday, Jun 12th

10:30 AM – 12:00 PM ET

Psychiatric Polygenic Risk Scores in Reproductive Decision-Making: Perspectives from Adults with Psychiatric Conditions

Location: Hub 1

Speaker: Ana Lucia Battaglino, MA (she/her/hers) – Harvard University

Clinical genetic testingReproductive genetics

Wednesday, Jun 12th

3:30 PM – 5:00 PM ET

Governing Research on Reproductive Genomic Interventions: Priorities of Potential Research Participants from Sex and/or Gender Minorities

Location: Hub 1

Speaker: Harlie Dion Custer (she/her/hers) – Case Western Reserve University

Reproductive genetics

Return of results and incidental findings

Monday, Jun 10th

1:30 PM – 3:00 PM ET

Exploring Ethical Dialogues in genomics research: A Qualitative Analysis of the Drama of DNA Method in South Africa.

Location: Hub 1

Speaker: Lebogang Montewa, MPH (she/her/hers) – University of Cape Town (South Africa)

Community engagementEducation and public understanding of genetic scienceReturn of results and incidental findings

Monday, Jun 10th

3:30 PM – 5:00 PM ET

Federally Qualified Health Center All of Us Participants Conflating Research and Care

Location: Hub 2

Speaker: Danielle Pacia, MBE – The Hastings Center

Biobanking and genomic databasesEquity and justice in geneticsReturn of results and incidental findings

Tuesday, Jun 11th

10:30 AM – 12:00 PM ET

PRAGMatIQ study - Rapid whole-genome sequencing in children in acute care in a universal health care system: Physicians underestimate parental expectations and concerns

Location: Hub 1

Speaker: Claudia Azuelos, MD (she/her/hers) – Université de Montréal and CHU Ste-Justine (Canada)

Clinical genetic testingReturn of results and incidental findings

Tuesday, Jun 11th

10:30 AM – 12:00 PM ET

Digital solutions to deliver genomic medicine: Taking a closer look at what’s under the hood

Location: Hub 2

Corresponding Author: Catharine Wang, PhD, MSc (she/her/hers) – Boston University

Panelist: Deborah Cragun, PhD, MS – University of South Florida

Panelist: Angela Bradbury – University of Pennsylvania

Panelist: Anita Kinney, PhD – Rutgers University

Panelist: Wendy Kohlmann – University of Utah

Genetic counselingMethodology and study designReturn of results and incidental findings

Tuesday, Jun 11th

10:30 AM – 12:00 PM ET

Clinician Perspectives on Polygenic Risk Scores in Child and Adolescent Psychiatry: Current Concerns and Future Utility

Location: Hub 1

Speaker: Page M. Trotter, MPH (she/her/hers) – Baylor College of Medicine

Clinical genetic testingReturn of results and incidental findings

Tuesday, Jun 11th

10:30 AM – 12:00 PM ET

Patient Perspectives on the use of Polygenic Risk Scores in Psychiatry

Location: Hub 1

Speaker: Amanda R. Merner, PhD – Harvard University

Return of results and incidental findings

Tuesday, Jun 11th

1:30 PM – 3:00 PM ET

Nothing About Us Without Us: Sharing Relevant Results with Communities that Provide Genomic Data

Location: Hub 2

Speaker: Sarah LeBaron von Baeyer, PhD (she/her/hers) – Variant Bio

Community engagementEquity and justice in geneticsReturn of results and incidental findings

Tuesday, Jun 11th

3:30 PM – 5:00 PM ET

Impact of Returning Genomic Results Related to Adult-Onset Conditions to Pediatric Patients

Location: Hub 1

Speaker: Adam Buchanan, MS, MPH, CGC (he/him/his) – Geisinger College of Health Sciences

Clinical genetic testingReturn of results and incidental findings

Wednesday, Jun 12th

10:30 AM – 12:00 PM ET

Patient perceptions of duties and responsibilities in variant reclassification and recontact process: A modified cognitive interview study

Location: Hub 1

Speaker: Sukh Makhnoon, PhD, MS – University of Texas Southwestern Medical Center

Clinical genetic testingReturn of results and incidental findings

Use of race, ethnicity, and ancestry categories

Monday, Jun 10th

1:30 PM – 3:00 PM ET

From liminality to liberation: FACTS as a case study for addressing VUSs and prioritizing equity in genomic medicine

Location: Hub 2

Speaker: Jennifer K. Wagner, JD PhD (she/her/hers) – Pennsylvania State University

Equity and justice in genetics

Tuesday, Jun 11th

1:30 PM – 3:00 PM ET

Anticipating social and interpersonal influence of polygenic scores in future clinical settings

Location: Hub 1

Speaker: Susan Persky, PhD (she/her/hers) – National Human Genome Research Institute, National Institutes of Health

Tuesday, Jun 11th

3:30 PM – 5:00 PM ET

The Impact of Patient Race and Polygenic Risk Scores on Cancer Genetic Counselors’ Risk Assessment and Management in Breast Cancer Clinical Vignettes

Location: Hub 2

Speaker: Yifei Sylvia Lin, ScM, CGC – NIH/Johns Hopkins Genetic Counseling Graduate Program

Genetic counseling

Wednesday, Jun 12th

10:30 AM – 12:00 PM ET

Cross-Disciplinary Research and Public Engagement on Eugenic Sterilization: Mixed Methods, Data Visualization, and Cross-State Comparisons

Location: Forum B

Moderator: Nicole Novak, PhD, MSc (she/her/hers) – University of Iowa

Panelist: Heather Dron, PhD, MPH (she/her/hers) – University of California, Los Angeles

Panelist: Kate O'Connor, MPH, MA (they/she) – University of Michigan

Panelist: Alexandra Stern (she/her/hers) – University of California, Los Angeles

Wednesday, Jun 12th

3:30 PM – 5:00 PM ET

The Legal Weaponization of Racialized DNA

Location: Hub 2

Speaker: Jonathan Kahn, JD, PhD (he/him/his) – Northeastern University

Equity and justice in geneticsLaw, regulation, and governance

Wednesday, Jun 12th

3:30 PM – 5:00 PM ET

Racial Politics and Health Equity in Genome-Editing Therapeutics

Location: Hub 2

Co-Author: Santiago J. Molina, PhD (he/they) – Northwestern University

Speaker: Melissa Creary, PhD, MPH

Equity and justice in genetics