Full Schedule

7:30 AM – 8:30 AM ET

Breakfast

Location: The Gallery

7:30 AM – 8:30 AM ET

Registration

Location: Welcome Desk

8:30 AM – 8:50 AM ET

Welcome and Announcements

Location: Forum A

Co-Chair: – Columbia University

8:50 AM – 10:00 AM ET

Plenary: Scientific, Regulatory, and Ethical Implications of Interventional Genetics and Individualized Medicines

Location: Forum A

Plenary Speaker: – Harvard University

10:00 AM – 10:30 AM ET

Break

10:30 AM – 12:00 PM ET

Editing Future Generations, Centering Translational Justice: How Do Potential End Users Imagine the Benefits and Tradeoffs of Prenatal Genetic Therapies?

Location: Forum A

Corresponding Author: – University of California, San Francisco

Panelist: – Case Western Reserve University School of Medicine

Panelist: – Mayo Clinic

Panelist: – The Ohio State University-College of Medicine

Equity and justice in geneticsReproductive genetics

10:30 AM – 12:00 PM ET

Cross-Disciplinary Research and Public Engagement on Eugenic Sterilization: Mixed Methods, Data Visualization, and Cross-State Comparisons

Location: Forum B

Moderator: – University of Iowa

Panelist: – University of California, Los Angeles

Panelist: – University of Michigan

Panelist: – University of California, Los Angeles

10:30 AM – 12:00 PM ET

Experiential ethics training for genomic researchers

Location: Hub 2

Corresponding Author: – Stanford University

Panelist: – Stanford Center for Biomedical Ethics

Panelist: – University of Maryland

Panelist: – Stanford University

AI and machine learningEquity and justice in geneticsMethodology and study design

10:30 AM – 12:00 PM ET

Paper Session G4

Location: Hub 1

Clinical genetic testing

10:30 AM – 12:00 PM ET

Patient perceptions of duties and responsibilities in variant reclassification and recontact process: A modified cognitive interview study

Location: Hub 1

Speaker: – University of Texas Southwestern Medical Center

Clinical genetic testingReturn of results and incidental findings

10:30 AM – 12:00 PM ET

“I have data, I have science behind my treatment plan”: A qualitative study of clinician and patient views and experiences with pharmacogenomic testing for depression

Location: Hub 1

Speaker: – University of Michigan

Clinical genetic testing

10:30 AM – 12:00 PM ET

Identifying and Dismantling Systemic Ableism in Prenatal Screening

Location: Hub 1

Speaker: – University of Kentucky

Clinical genetic testingEquity and justice in genetics

10:30 AM – 12:00 PM ET

Psychiatric Polygenic Risk Scores in Reproductive Decision-Making: Perspectives from Adults with Psychiatric Conditions

Location: Hub 1

Speaker: – Harvard University

Clinical genetic testingReproductive genetics

12:00 PM – 1:30 PM ET

Lunch

Location: The Gallery

1:30 PM – 3:00 PM ET

Novel Nonmedical Uses of Genetic Information and Future Concerns

Location: Forum A

Corresponding Author: – Baylor College of Medicine

Moderator: – University of Washington

Panelist: – Lurie Children's

Panelist: – Pennsylvania State University

Panelist: – Baylor College of Medicine

Biobanking and genomic databasesLaw, regulation, and governance

1:30 PM – 3:00 PM ET

Contemporary bioethics and policy changes for children with profound disabilities: Cardiac Surgery in Children with Trisomy 18

Location: Forum B

Corresponding Author: – Seattle Childrens Research Institute

Panelist: – Trisomy Collaborative

Panelist: – University of Utah

Panelist: – Yale University

Equity and justice in genetics

1:30 PM – 3:00 PM ET

Weighing the Benefits, Harms, and Limitations of Genetic Testing in the Workplace

Location: Hub 2

Corresponding Author: – University of Michigan

Panelist: – University of Nevada, Las Vegas

Panelist: – The Jackson Laboratory for Genomic Medicine

Panelist: – University of Iowa

Moderator: – University of Michigan

Genetic counseling

1:30 PM – 3:00 PM ET

Paper Session H4

Location: Hub 1

Equity and justice in genetics

1:30 PM – 3:00 PM ET

Genomics Research and Childhood Obesity through the Lenses of Equity: Reassessing Responsibilities and Costs between Families and Society

Location: Hub 1

Speaker: – Technical University of Munich (Germany)

Equity and justice in geneticsPerinatal and public health genetic screening

1:30 PM – 3:00 PM ET

ELSI of implementing clinical genetic testing in kidney disease and transplantation care

Location: Hub 1

Speaker: – NYU Grossman School of Medicine

Biobanking and genomic databasesClinical genetic testingEquity and justice in genetics

1:30 PM – 3:00 PM ET

Increasing Diversity in Genetic Databases: Lessons Learned from 20 Years of Slow Progress

Location: Hub 1

Presenter: – Drexel University

Biobanking and genomic databasesEquity and justice in genetics

1:30 PM – 3:00 PM ET

The Failed Protection of Proposed Changes to HIPAA

Location: Hub 1

Speaker: – Vanderbilt University

Law, regulation, and governance

3:00 PM – 3:30 PM ET

Break

3:30 PM – 5:00 PM ET

From Person-Centered to Family-Centered: Navigating Practical and Ethical Issues in Health System-Led Contact for Cascade Screening

Location: Forum A

Panelist: – National Cancer Institute and NIH Bioethics Department

Panelist: – Mount Sinai Hospital

Panelist: – Kaiser Permanente Washington

Moderator: – St. Jude Children's Research Hospital

Clinical genetic testing

3:30 PM – 5:00 PM ET

The ELSI of Engagement: Benefits and Challenges to Achieving a Just Genomics

Location: Forum B

Corresponding Author: – Stanford Center for Biomedical Ethics

Panelist: – Foundation for Angelman Syndrome Therapeutics

Panelist: – Stanford University

Panelist: – Northwestern University

Panelist: – WUSM/Undiagnosed Diseases Network at Harvard Medical School

Community engagementEquity and justice in genetics

3:30 PM – 5:00 PM ET

Paper Session J3

Location: Hub 2

Equity and justice in genetics

3:30 PM – 5:00 PM ET

Assumptions of value: Exploring normative aspects of newborn genomic sequencing in decision analytic models

Location: Hub 2

Speaker: – Harvard University

Equity and justice in geneticsMethodology and study designPerinatal and public health genetic screening

3:30 PM – 5:00 PM ET

Re-envisioning Translational Equity in Pediatric Gene Therapy Research

Location: Hub 2

Speaker: – Case Western Reserve University School of Medecine

Equity and justice in genetics

3:30 PM – 5:00 PM ET

The Legal Weaponization of Racialized DNA

Location: Hub 2

Speaker: – Northeastern University

Equity and justice in geneticsLaw, regulation, and governance

3:30 PM – 5:00 PM ET

Racial Politics and Health Equity in Genome-Editing Therapeutics

Location: Hub 2

Co-Author: – Northwestern University

Speaker:

Equity and justice in genetics

3:30 PM – 5:00 PM ET

Paper Session J4

Location: Hub 1

3:30 PM – 5:00 PM ET

Assessing the impacts of the major human genome editing (HGE) reports on the governance landscape

Location: Hub 1

Speaker: – University of North Carolina - Chapel Hill

Law, regulation, and governance

3:30 PM – 5:00 PM ET

Reporting practices for sexual and gender minority demographic information in NIH-supported genomic studies

Location: Hub 1

Speaker: – National Human Genome Research Institute, National Institute of Health

Methodology and study design

3:30 PM – 5:00 PM ET

Key stakeholders’ moral attitudes on somatic gene editing for inherited cardiomyopathy: a qualitative interview study

Location: Hub 1

Speaker: – University Medical Center Utrecht (Netherlands)

3:30 PM – 5:00 PM ET

Governing Research on Reproductive Genomic Interventions: Priorities of Potential Research Participants from Sex and/or Gender Minorities

Location: Hub 1

Speaker: – Case Western Reserve University

Reproductive genetics

5:00 PM – 6:00 PM ET

Closing Plenary Panel

Location: Forum A

Plenary Panelist: – University of Waikato, Te Pua Wananga ki te Ao (New Zealand)

Plenary Panelist: – The Hastings Center

Plenary Panelist: – Harvard University

Plenary Moderator: – Columbia University

Plenary Moderator: – Stanford University