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Full Schedule

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Full Schedule

  • Tuesday, June 11, 2024
  • 5:00 PM – 7:00 PM ET
    01- Who receives their genetic testing results? Exploring patient portal use and the implications of technological innovation
  • 5:00 PM – 7:00 PM ET
    02- Analysis of the Impact of NHGRI’s Centers for Excellence in ELSI Research (CEER) Program
  • 5:00 PM – 7:00 PM ET
    03- Poster 1. #DATABACK: Structuring Indigenous Bioeconomies through Indigenous Data and Digital Sovereignty for Precision Health
  • 5:00 PM – 7:00 PM ET
    04- Poster 2. #DATABACK: Structuring Indigenous Bioeconomies through Indigenous Data and Digital Sovereignty for Precision Health
  • 5:00 PM – 7:00 PM ET
    05- Poster 3. #DATABACK: Structuring Indigenous Bioeconomies through Indigenous Data and Digital Sovereignty for Precision Health
  • 5:00 PM – 7:00 PM ET
    06- Connecting with NHGRI’s Ethical, Legal and Social Implications (ELSI) Research Program
  • 5:00 PM – 7:00 PM ET
    07- Regulation of data sharing in international genomics research: Ethical, social and legal implications
  • 5:00 PM – 7:00 PM ET
    08- Considerations on Sex Data Bias
  • 5:00 PM – 7:00 PM ET
    09- Demographic Associations with Genetic Familiarity and Self-Efficacy: Implications for Genetic Testing for Hereditary Cancers
  • 5:00 PM – 7:00 PM ET
    10- Engaging Multiracial Community in Genomics Research: What Does it Mean?
  • 5:00 PM – 7:00 PM ET
    11- Exploring Patient Perceptions of Emerging Gene Therapies for Arrhythmogenic Right Ventricular Cardiomyopathy
  • 5:00 PM – 7:00 PM ET
    12- A Contextual Integrity Framework for Genomic Data
  • 5:00 PM – 7:00 PM ET
    13- How Judges Decide: The Impact of Bio-Behavioral Sciences on Legal Decision-Making
  • 5:00 PM – 7:00 PM ET
    14- Ethical Considerations in Measuring Genetic and Genomic Competence Among Nurses: Insights from Survey Instruments
  • 5:00 PM – 7:00 PM ET
    15- Bridging the gap: a trainee-led effort to integrate ethics into graduate-level genetics education
  • 5:00 PM – 7:00 PM ET
    16- Genome-Wide Studies in Polycystic Ovary Syndrome and multiancestry analyses: a systematic review with equity in mind
  • 5:00 PM – 7:00 PM ET
    17- Project GIVE: Expanding Genetic Testing to Underserved Areas in the Rio Grande Valley Using an EHR-Agnostic Tele-Engagement Platform
  • 5:00 PM – 7:00 PM ET
    18- Re-Envisioning Translational Justice: Identifying Value-Based Policy Frameworks Supporting Prenatal Gene Editing
  • 5:00 PM – 7:00 PM ET
    19- Reproductive decision-making in people with transfusion-dependent-thalassemia
  • 5:00 PM – 7:00 PM ET
    20- Información de la Enfermedad de Alzheimer para Latinos (IDEAL): A Study Framework for Alzheimer's Genetic Risk Disclosure in an Urban, Latino Population
  • 5:00 PM – 7:00 PM ET
    21- Implementing a DNA strategy to address forcibly separated Ukrainian children
  • 5:00 PM – 7:00 PM ET
    22- Poster 1. The Ethics of Sequencing Every Baby at Birth: International Perspectives
  • 5:00 PM – 7:00 PM ET
    23- Poster 2. The Ethics of Sequencing Every Baby at Birth: International Perspectives
  • 5:00 PM – 7:00 PM ET
    24- Anticipating ELSI of the NIH Human Virome Program

    Presenter: Gail E. Henderson, PhD – University of North Carolina - Chapel Hill

  • 5:00 PM – 7:00 PM ET
    25- Advancing Return of Individual Research Results for Biomarkers – A PRISMA-Scoping Review
  • 5:00 PM – 7:00 PM ET
    26- Considerations of Therapeutic Gene Editing on the Indigenous Population in Northern Ontario
  • 5:00 PM – 7:00 PM ET
    27- What counts as sex/gender and who decides? Policy analysis of US legal gender marker changes on identification documents
  • 5:00 PM – 7:00 PM ET
    28- A Tool for Ethical Analysis of Persuasion and Influence in Genetic Counseling Communication
  • 5:00 PM – 7:00 PM ET
    29- Lynch Syndrome and risk-reducing gynecologic surgery: Decision-making factors and life context
  • 5:00 PM – 7:00 PM ET
    30- What motivates adopted individuals to pursue elective genetic testing? Findings from the Sanford Chip program
  • 5:00 PM – 7:00 PM ET
    31- How does the severity of a genetic condition affect the utility of knowing about it?
  • 5:00 PM – 7:00 PM ET
    32- Experiences of Black Pregnant People Offered Prenatal Diagnosis in the Setting of Fetal Anomalies: A Qualitative Study
  • 5:00 PM – 7:00 PM ET
    33- The Nurtured Genetics Hypothesis and its Psychosocial Implications
  • 5:00 PM – 7:00 PM ET
    34- Decision Stability among Adolescents and Young Adults Making Choices about Learning Genomic Research Results