Professor
Seattle Childrens Research Institute
Seattle, Washington, United States
Benjamin Wilfond is an investigator at the Treuman Katz Center for Pediatric Bioethics and Palliative Care and a pulmonologist at Seattle Children's Hospital. He is professor, Division of Bioethics & Palliative Care and Pulmonary & Sleep Medicine, Department of Pediatrics, University of Washington School of Medicine. He was the inagrual Bioethics and Palliative Care division chief and Treuman Katz Center for Pediatric Bioethics director. At UW, he is also core faculty for the Institute for Public Health, an adjunct professor in the Department of Bioethics and Humanities, and leads the Institute of Translational Sciences (CTSA) Bioethics Core. He is a member of the NIH Pragmatic Trials Collaboratory Regulatory and Ethics Core, the research ethics case co-editor of the American Journal of Bioethics and on the editorial boards of the Hastings Center Report and Ethics and Human Research. His scholarship has focused on issues related to disabilities, genetics, and clinical research. His current projects relate to supporting families and clinicians making value-based decisions with balanced information, including decisions about tracheostomy in children with disabilities, heart surgery for children with trisomy 18 who are on mechanical ventilation, and gene therapy research for people with cystic fibrosis. Between 2013-2023, he was an MPI of two serial NHGRI CSER (Clinical Sequencing Research) Consortium U-awards (with Katrina Goddard PhD) that tested genomic-related interventions in clinical populations. NextGen focused on expanded panels for carrier testing, and CHARM focused on hereditary cancer testing within the context of integrated health systems, proritizing on those with limited literacy or preference to speak Spanish.
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Tuesday, June 11, 2024
3:30 PM – 5:00 PM ET
Wednesday, June 12, 2024
1:30 PM – 3:00 PM ET