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The ELSI of Engagement: Benefits and Challenges to Achieving a Just Genomics
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Meghan Halley, PhD, MPH – Stanford Center for Biomedical Ethics ### 2254030###Corresponding Author###Senior Research Scholar###Stanford Center for Biomedical Ethics###
Corresponding Author: Meghan Halley, PhD, MPH – Stanford Center for Biomedical Ethics
### @@@ Ryan Fischer – Foundation for Angelman Syndrome Therapeutics ### 2254059###Panelist######Foundation for Angelman Syndrome Therapeutics###
Panelist: Ryan Fischer – Foundation for Angelman Syndrome Therapeutics
### @@@ Daphne Martschenko, PhD – Stanford University ### 2231796###Panelist###Assistant Professor###Stanford University###
Panelist: Daphne Martschenko, PhD – Stanford University
### @@@ Jennifer L. Young, PhD, MA, MS (she/her/hers) – Northwestern University ### 2246370###Panelist###Assistant Professor###Northwestern University###
Panelist: Jennifer L. Young, PhD, MA, MS (she/her/hers) – Northwestern University
### she/her/hers @@@ AudreyStephannie Maghiro, AB (she/her/hers) – WUSM/Undiagnosed Diseases Network at Harvard Medical School ### 2377751###Panelist###Medical Student/Research Coordinator###WUSM/Undiagnosed Diseases Network at Harvard Medical School###
Panelist: AudreyStephannie Maghiro, AB (she/her/hers) – WUSM/Undiagnosed Diseases Network at Harvard Medical School
### she/her/hers
The Ethics of “Traceback Testing”: Perspectives of First-Degree Relatives of Deceased Individuals on Privacy, Consent and Benefit.
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Mikaella I. Caruncho, MSW, MPH (she/her/hers) – Columbia University ### 2254110###Speaker###Research Coordinator###Columbia University###
Speaker: Mikaella I. Caruncho, MSW, MPH (she/her/hers) – Columbia University
### she/her/hers
The Failed Protection of Proposed Changes to HIPAA
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Ellen Wright Clayton, JD, MD (she/her/hers) – Vanderbilt University ### 2231784###Speaker###Professor###Vanderbilt University###
Speaker: Ellen Wright Clayton, JD, MD (she/her/hers) – Vanderbilt University
### she/her/hers
The Impact of Patient Race and Polygenic Risk Scores on Cancer Genetic Counselors’ Risk Assessment and Management in Breast Cancer Clinical Vignettes
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Yifei Sylvia Lin, ScM, CGC – NIH/Johns Hopkins Genetic Counseling Graduate Program ### 2254685###Speaker###Genetic Counselor###NIH/Johns Hopkins Genetic Counseling Graduate Program###
Speaker: Yifei Sylvia Lin, ScM, CGC – NIH/Johns Hopkins Genetic Counseling Graduate Program
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The Legal Weaponization of Racialized DNA
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Jonathan Kahn, JD, PhD (he/him/his) – Northeastern University ### 2254705###Speaker###Professor of Law and Biology###Northeastern University###
Speaker: Jonathan Kahn, JD, PhD (he/him/his) – Northeastern University
### he/him/his
Tumor Whole-Genome-Sequencing: ethical guidance on dealing with germline data
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Noor Giesbertz, MD, PhD – Antoni van Leeuwenhoek Hospital (Netherlands) ### 2254120###Speaker###Clinical Geneticist###Antoni van Leeuwenhoek Hospital (Netherlands)###
Speaker: Noor Giesbertz, MD, PhD – Antoni van Leeuwenhoek Hospital (Netherlands)
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